A searingly honest blog by a Deaf man who is losing his sight due to Usher Syndrome has been shared by numerous Deaf people on Facebook.
In the blog, Edan Chapman outlines to his friends why he’s had to withdraw from some social situations, explains how it feels to lose his sight when he loves photography and art, highlights the people who don’t believe he is blind, and details his frustration at having to go through a never-ending administration process to receive a payout after quitting his job. And much more.
Biggest of all, he asks the Deaf community to change, and become more accepting of people who are Deafblind or are losing their sight.
This is a must-read, to gain more of an insight into his life and many others who also have Usher Syndrome and/or are Deafblind.
Read the blog here: https://edanchapman.wordpress.com/2016/01/22/an-end-to-my-silence/
I’ve written a few articles for magazines trying to be positive and encouraging. I’ve received some beautiful messages from people, not just those afflicted but family members and peers stating that they have been given new hope. That’s wonderful! That makes me so happy, to be able to give others just that tiny bit of relief.
But I need others to realise that I need help too. Just because I try to be strong doesn’t mean I am. If I don’t come to your party, your dinner, your barbecue… It’s not because I didn’t want to. It’s because I didn’t sleep at all the night before and can barely see. I would be a terrible guest. It’s because I saw a video of something so beautiful I ended up crying for half an hour at the pain that I will never see it again. It’s because I read an article that made me feel small and petty and all my motivation and energy simply left me right there and then. It’s because to get to your house would take everything I had inside me and over an hour on public transport, being hyper-alert and vigilant and then when I’m there I simply sit in a corner and try to keep up and then I have to repeat all of that just to get home. To go to your beautiful party means I have to sacrifice the next two or three days lying in bed completely exhausted.
The Limping Chicken is the UK’s deaf blogs and news website, and is the world’s most popular deaf blog. It is edited by Deaf journalist and filmmaker Charlie Swinbourne.
Please note that the views of the writers are their own, and not necessarily the views of the Editor or site as a whole. Read our disclaimer here.
- Rayovac: Never run out of hearing aid batteries again by subscribing!
- Ai-Media: Remote captioning. Find out how to add Live Captions to Facebook Live!
- Bellman & Symfon: home alerting solutions
- Deaf Umbrella: sign language interpreting and communications support
- Appa: Communication services for Deaf, Deafblind and hard of hearing people
- SignLive: Online video interpreting for Deaf people
- SignVideo: Instant BSL video interpreting online
- 121 Captions: captioning and speech-to-text services
- Hearing Direct: Online hearing aids
- Signature: Leading awarding body for BSL qualifications
- Signworld: Learn BSL online!
- Cast Theatre, Doncaster: The UK's the UK’s first fully BSL integrated pantomime
- The National Theatre: Captioned and BSL accessible theatre in London
- Doncaster School for the Deaf: education for Deaf children
- Sign Solutions: communication support, training and translation
- InterpretersLive: On demand BSL video interpretation
- Hamilton Lodge School in Brighton: education for Deaf children
- Lipspeaker UK: specialist lipspeaking support
- Ozen: Australian hearing aid specialists
- Elmfield School, Bristol: Inclusive education for Deaf pupils
- deafPLUS: BSL advice helpline
- Exeter Deaf Academy: education for Deaf children
- Royal Shakespeare Company: Captioned and BSL interpreted performances (see dates here)
- Royal School for the Deaf, Derby: Residential education for deaf children
- RAD Tax Advice: Tax and Tax Credit info for Deaf people
- Deaf Independent: Deaf care and support services
- Performance Interpreting: BSL interpreting at concerts
- National Deaf Children's Society: The leading charity for deaf children
- cSeeker: Deaf-led educational communication support service
- Signed Culture: Advocating for BSL access to arts and culture
- SignHealth: healthcare charity for Deaf people
- CJ Interpreting: communication support in BSL
- Action Deafness Communications: sign language and Red Dot online video interpreting
- BSLcourses.co.uk: Provider of online BSL courses
- British Society for Mental Health and Deafness: Promoting positive mental health for deaf people