Browsing All posts tagged under »usher syndrome«

Gavin Dean: I need your help for my study on how Usher syndrome affects psychological wellbeing (BSL)

January 19, 2016


To take part in Gavin’s study, which has a deadline of Jan 31st, click here. Having Usher syndrome myself since I was a teenager, I have often found myself in many situations where both my deafness and blindness has left me feeling depressed, anxious, isolated, hopeless, and frustrated because of the many challenging and uncertain […]

Molly Watt: Let Me Be a Part

July 17, 2015


In a lot of my talks I often mention how grateful I am to have great family and friends. I could not imagine myself as a person without either, I really cannot. As I grew up I was very close to my parents and am lucky to have been well socialised. I have some amazing […]

Molly Watt: How my new Apple Watch suits me having Usher Syndrome

May 12, 2015


Having known about the Apple Watch for some time and knowing lots of my friends were planning to buy one, I was sceptical as my needs are quite different to that of those of the sighted and hearing. I have to rely on specific accessible features. However, I was curious as Apple products have been […]

“Do you like being called ‘brave'”? Rebecca Atkinson highlights the irony of Usher in the Deaf community (BSL)

February 18, 2015


Do you like being called brave? Brave for facing the world ‘in spite’ of your deafness? Have you ever been called inspirational? Not for a big achievement like finding a vaccination for cancer, but for just getting yourself dressed and out of the door ‘in spite’ of your deafness? Have you ever felt like the […]

Read: Guardian article on Usher syndrome – “Don’t define me by a condition I happen to have”

May 12, 2014


Check out the Guardian’s article, written by our Editor Charlie Swinbourne and featuring Nick Sturley, by clicking here: Extract: Nick Sturley still recalls the train journey home from a hospital visit in London when he was 10 years old. His mother sat opposite him, reassuring him that she was fine, but even at that age he was a […]

The Secret Deafie – Losing sight, gaining insight

October 2, 2013


The Secret Deafie is a series of anonymous columns written by different writers. In this post, first published on this site in March 2012, a writer tells us about living with Usher Syndrome. When I was younger, I was just Deaf. I, like other Deaf people, held my vision sacrosanct. The idea of losing my […]

“Cancer has changed me as a person.” Meet Emma Boswell, who has set up a Cancer Support Group in London

September 24, 2013


A brand-new Cancer Support Group has been set up in London by Emma Boswell, who herself recently recovered from the disease. The group will aim to offer support and reassurance, and will be a safe place where people can share their experiences. It will meet between 5-7pm on 15th October, 19th November and 17th December […]