My name is Gary Thomas, I am an artist, filmmaker and writer. I’ve had ‘hidden disabilities’ for most of my life (it’s a long story, wait for the autobiography!).
I’ve been deaf for some time, after being born with a flat nose and cleft pallet, but it’s only in the past two or three years that I’ve given in and accepted it. This is despite working with people with all kinds of disabilities.
Charlie asked me to write a post for Limping Chicken about being deaf, or, more precisely, ‘coming out’ as being deaf. This worried me slightly.
Thing is, I’m not completely out. I have 70% hearing loss in one ear, so I can get away with not wearing a hearing aid most of the time. But when I do wear it, it helps enormously.
I’m sitting on the train on my way to Bristol with my noise cancelling headphones on right now (a deaf guy wearing headphones, who’d have thought!) and I’m going to a event on low budget feature films.
Here’s the problem. I’m going to wear my hearing aid when I get to the event. But I might not.
I might get there and not feel confident about using it. I might put it on and get a load of feedback from it (very annoying!!) and have to take it off. So, what to do…
Halfway in?
So I still feel halfway between the deaf and hearing worlds.
When I went to an event in Brighton last year, a friend was practising signing with the interpreters, but I couldn’t understand what they were saying. Because of the background noise, I couldn’t quite hear them either.
Sad face!
I still wonder if I have a ‘right’ to go to the subtitled screenings I see posted on Facebook, because I can hear OK in my right ear. I still wonder if I should tick the ‘deaf’ boxes in monitoring forms, when I don’t need interpreters. Lets face it, I have no problem ticking the disabled box. (I hope that box gets the appropriate level of care it needs).
Anyway, I’m getting more used to it, and to the idea that actually it’s up to me what I do, and how I cope with things. Having had what are called ‘hidden disabilities’ for a long time, I got to the point where I accepted that I could do with a hearing aid.
I think my fear was that having been able to pick and choose who I tell about my hidden disabilities, I thought the hearing aid would be the most obvious thing in the world. (This despite wearing a T-Shirt with the word ‘Disabled’ on it for a photo shoot!)
I told people maybe a year ago, when I first started wearing it. Literally one time I pointed at it rather excitedly to the group I was working with.
I’m still surprised when I see video of me and you notice my hearing aid (especially when I’ve had my haircut). But ultimately, it’s up to me how I use it. I just wish it would work better.
Gary Thomas is an artist, filmmaker and writer. He’s made 8 short films, and has been funded by Arts Council, DADA-South, Screen South and Unltd. His work focuses on sexuality and his own experiences with disability, particularly mental health. He has just completed a film installation inspired by the London Olympics, ‘The Dog & The Palace’ (it has subtitles!). You can follow him on twitter @2weddings, look at his website www.garythomas.co.uk or become a fan: www.facebook.com/garythomasfilms
The Limping Chicken is supported by Deaf media company Remark!, training and consultancy Deafworks, and provider of sign language services Deaf Umbrella.
Lana Senchal
May 10, 2012
When I went to an event in Brighton last year, a friend was practising signing with the interpreters, but I couldn’t understand what they were saying. Because of the background noise, I couldn’t quite hear them either.
You cannot hear Deaf / Hearing people signing!! How to understand them, you will have to try to watch their mouth movements and try to make out what they are signing? Any consideration about going to BSL course?
Editor
May 10, 2012
I believe Gary is referring to being able to hear the interpreters’ voiceover – sorry if that wasn’t clear. Ed
Catherine Small
May 10, 2012
Your article really struck a chord with me. I have a similar level of hearing loss in my left ear, but can hear OK with my right. I don’t feel properly deaf, but I can’t hear properly either.
Paul Redfern
May 10, 2012
It’s never easy admitting to something that the rest of the world has such a downer on and, of course, it’s a Catch 22 situation in social situations – do you stand there grinning foolishly pretending that you are understanding what’s going on or do you repeatedly ask for clarification and risk being thought of as a nuisance?
Some lipreading classes don’t just work on lipreading they also work on communication tactics – very useful when you’re not one or the other.
Meanwhile – I congratulate you for writing this – it’s a step forward to acceptance of yourself and learning how to manage the rest of the world. Well done.
Dave
May 11, 2012
Interesting article!
I find myself in a similar situation – I had a cleft palate and have reduced hearing in the left ear and am faced with the possibility of that reducing further. The label of ‘hearing’ seems increasingly inadequate as people expect you to hear as well as they do!
Rob
May 22, 2012
Sorry to pick on you in particular but, since you’ve stated it so definitely, please can you explain what you mean by “70% deaf”? As far as I know, hearing is logarithmic and hearing loss cannot be meaningfully expressed as a percentage. Even organisations such as RNID state things in percentages when they shouldn’t. If you had total deafness in one ear and perfect hearing in the other, would that make you 50% deaf overall? 70dB loss does not equal 70% so what do you mean? IMO the safest way to express deafness, and the way that we should encourage, is to state the range of your audiogram. For example, mine goes from -70dB to -120dB.