Many Deaf people are currently receiving Disability Living Allowance (DLA) as of legal right and may, like me, have got used to it.
Unfortunately, the coalition government has decided to go back on this arrangement by abolishing DLA and replacing it with a new benefit, the Personal Independence Payment (or PIP for short.) The government say they want to ensure that the money will go to those who ‘most need it.’ I am not so sure about this as they have also mentioned a 20% target for cuts.
These changes don’t necessarily mean that Deaf people will not get PIP, what they mean is that we will have to start again with moved goalposts. Some people who qualified before may miss out this time around. It seems to me that not all Deaf people are aware of what is happening, so I thought that I would provide a brief description.
The first thing to be aware of is that these changes will affect all Deaf people of working age who are currently receiving DLA. They will apply even to those people who have won an indefinite or lifetime award at tribunal.
At some point between October 2013 and March 2016 people who are already getting DLA will be asked to apply for PIP. They will not just cross over to the new benefit automatically. Whether or not they continue to get money depends on if they meet the new criteria.
From April 2013 new claims for DLA will not be allowed in certain parts of the country as PIP is first rolled out and claims must be made for the new benefit instead. Then from June 2013 only claims for PIP will be allowed country-wide.
If you think that it is wrong for the government to retrospectively change people’s benefit entitlement like this, you will have no argument from me. But here we are and so when you are asked if you would like to apply for PIP, I would suggest asking for help from your council’s welfare rights team, the CAB or an organisation like RAD before filling in the form. Here we go again!
Principal source of information: http://www.dwp.gov.uk/policy/disability/personal-independence-payment/
Further reading:
http://www.ndcs.org.uk/news/ndcs_news/dyp_to_lose_out.html
http://www.ekklesia.co.uk/files/response_to_proposed_dla_reforms.pdf
Tim is Deaf from a young age, a law graduate and ex CAB volunteer. He now divides his time between art, walking his dog and maniacal armchair-activism. He is a slow, but steady BSL learner. You can follow him on Twitter as @TimRegency
The Limping Chicken is supported by Deaf media company Remark!, provider of sign language services Deaf Umbrella, the Deaf training and consultancy Deafworks, and the RAD Deaf Law Centre,
lana senchal
October 23, 2012
Deaf people who have communication issues will score minimum 8 points that enable them to receive PPI (standard rate) and echanted rate if more than 8 points
lana senchal
October 23, 2012
Information about PPI is fairly clear and simple to read.. look up PPI on internet
lana
October 23, 2012
Activity 7. Communicating
Can communicate unaided and access written information unaided, or using spectacles or contact lenses. – Score 0
Needs to use an aid or appliance other than spectacles or contact lenses to access written information. – Score 2
Needs to use an aid or appliance to express or understand verbal communication. – Score 2
Needs assistance to access written information. – Score 4
Needs communication support to express or understand complex verbal information. – Score 4
Needs communication support to express or understand basic verbal information. – Score 8
Cannot communicate at all. – Score 12
Janet Wood
October 23, 2012
I have never claimed any DLA although I am profoundly deaf and have communication issues. I have been working from home and communicate solely by email/messenger(clearly this has led to increased isolation) but I have just lost 80% of my work and struggling to find more – do you think there is any case for me to claim PIP as I think it’s going to be very hard to find work in the future. Like Tim I am a graduate (economics) and have experience in finance.
Ni
October 23, 2012
but in order to score 8 points you have to not be able to hold a short and easy conversation. literally a sentence. anyone who can lip read or write something down on paper wont qualify from what i understand…
Janet W
October 23, 2012
Most deaf and HOH people can communicate by having words written down I would think(?) so does that mean that very few of us would qualify even though someone needs to write the words down i.e. we would need some form of an interpreter?
Tali
October 23, 2012
What about activity 8 – engaging socially…..can deaf people, especially those who are profoundly deaf and lipread but struggle to follow a conversation around a table… cam they get points on this?
barakta
October 23, 2012
I think much of the issue around PIP is that we will not know how the criteria are interpreted by decision makers at the DWP and ‘medical’ assessors if it comes to that until it goes live and is battered into shape.
It’s much like many DWP criteria for deafness benefit/recognition entitlement is not hearing a loud shout at 1m away. This is a meaningless heuristic, what frequency is the shout, am I mean to understand the word, is hearing it at all counting or only if I hear it above a certain level? Does it mean with or without my hearing aids – does it matter if I rarely wear them outside/home alone?
With the best will in the world PIP will be a serious learning curve for the advisory organisations as well as individuals. The cost of failure is a potential decrease or termination in benefits many of us rely on to help cover the additional cost of deafness and or disability.
lana
October 23, 2012
As far I am concerned, I am Deaf and i cannot communicate fully and normally with hearing people score 8 and I have to write down on papers score 2
Janet W
October 23, 2012
Lana I totally agree as I also cant communicate effectively with hearing people especially socially but if the DLA/PIP was provided, from purely a financial perspective, what services would the benefit be used for?
Tali
November 8, 2012
Janet W – The benefit would be used for : – paying for a mobile so I can text, paying for a computer, paying for internet connection so I can communicate, paying for lipspeaker at social events etc Do you realise how much it cost to book ONE lipspeaker? About 200 quids for 3 hours. Thats more than a months DLA.
Janet W
November 8, 2012
How do you apply to get a lip speaker? I am new to all this and have never claimed DLA but borne costs myself and maybe I should try and claim it as all audiology and hearing therapy has either gone or been reduced. I was going to buy some marketing material to help my business but then found it was audio so would not help and the alternative was about 5 times the cost!
Tali
November 9, 2012
For business use Access to Work..they give grants etc. DLA is more for personal use.
Booking lipspeaker through agencies but remember to check with Access to Work (if for business) and other service providers should bear the costs. DLA is more for personal use and you pay yourself.
Lana Senchal
November 9, 2012
Janet,
I suppose you can search on internet.. i tried just now…http://www.lipspeaking.co.uk/find_az.html hope it helps
Tali
November 9, 2012
Thats a good list. Avoids agencies and going to lipspeaker directly. Thanks for that.
diana
July 6, 2014
I wear 2 hearing aides but I cant have a conversation with out them as I cant hear a full sentence, I cant understand anyone if in a crowed or in a busy shop so I have to go with my partner, I get nervous as I don’t want ppl talking to me incase I don’t understand them I panic if ppl are behind me incase they’ve asked me to move or get them some thing and ive not heard them so they go away thinking im ignorant its horrible :/ i suffer alot of ear infections and suffer with my balance but im not hopefull on getting pip, theres more to deafness than just hearing, I think its wrong how deaf ppl are being eliminated because it affects us in mant different ways, I wont go out alone and I don’t want ppl talking to me how ignorant must I look.
Katy
February 9, 2016
I was born partially deaf,I had DLA till I was 16 (my older brother has his for life) when it ended my parents re-applied on my behalf and it was decided because I wasn’t deaf enough to get DLA again. I tried a second time when I was 18 and still nothing. I looked at the pip point system a couple of years ago but I can’t score above a 6. I am quite independent, and I was raised in the ‘hearing world’, but I do struggle with conversations and socialising and I can’t hear the fire alarm when I’m sleeping, nor the doorbell or the phone or my mobile. Hearing aids help but recently I went up to a higher powered hearing aid which tells me quite clearly that my hearing is gradually declining,(and I’m still not deaf enough it seems)