Hi Suzie! Describe the aims of the group?
The needs of deaf and HOH people are diverse. We listen if we have residual hearing, we lipread, we use body language, gesture and facial expression. We may use hearing aids, including CI and BAHA. Some of us use a sign language like BSL but most will use other communication methods such as speech to text, lipspeakers, personal listeners/loops, communicator guides, cued speech and more.
All of us seem to have issues with access to communication – whether it is for work or for social purposes – that we need to address as a group. There are many other issues in access to services, information and facilities that also need to be debated and acted upon.
The group is a place to seek peer support, to encourage others with their confidence to ask for support they need. The group have so far educated others in ATW, UNCRPD, Equality Act 2010 NGTR and many others. The most important aim, from the beginning, was to make sure that those who don’t use BSL are aware of what is available to them and how to access it.
The second most important aspect is to help many members out of isolation, to empower all deaf deafened and hard of hearing people to have a voice for change, and focus on changing imbalance of perceptions – not all deaf people use BSL, so where is the support for non-signers?
Who was involved in setting it up?
The group was set up by me and other deaf people who advocate support for those who do not use BSL, who have previously had nowhere to go.
For a long time we have seen deaf, deafened and hard of hearing people getting frustrated with lack of information, peer support and general ignorance of their needs. Some of us got together, and discussed doing something about but we were not too sure if Facebook was the best way at the beginning.
In the end, getting included in the Facebook group which had nothing to do with our ethos “ Spit the dummy” was in the way a turning point. We decided “nothing about us without us” and “Pardon Group “was born.
What has the response been like?
The response was humbling! So many people joined within the first month, 900 people. It proved that there is a need of this kind of information and support, which is provided in a more accessible manner: not by just providing dry reports and documentation.
One thing that has come out of the group is the fact that quite a lot of the members feel their access needs are not being met. Do you feel this is a big problem?
This is a very big problem and we are sure that with right encouragement, our members will feel assertive enough to stand up to authorities, public bodies and so on who often out of ignorance, or misunderstanding do not provide communication support for those who do not understand BSL.
What are your ambitions for the group?
At the beginning, we did not have any major ambitions but seeing the needs and “cry for help” daily sometimes, we are looking at forming core group of activists who will now engage with Parliament, Local Authorities and try make positive changes for all.
Right now, having been part of the meeting of deaf groups with Sir Malcolm Bruce recently, our priority is to support his Private Members Bill.
Check out the Pardon Facebook group here, and click here to go to the brand-new Pardon website.
Interview by Charlie Swinbourne, Editor
Andy not Mr Palmer but another one
September 18, 2013
I’m so glad that they have formed this group. Historically there has always been a demand for a support group for non-signing deaf people but since the RNID forum closed there was nowhere to go. They didn’t realise at the time what an important resource their forum was, we only found out by accident when I was asked to set up a new group as a replacement. I set the site up and handed it over to the owner. When she opened it to the public we had a couple of hundred new members. Overnight! So I always knew the demand was there. Pardon have got it absolutely spot-on.
However what happens in the future depends on the way it is run. The group I set up had to be closed down because it was being used to abuse other deaf people. The owner got totally carried away and the server admin closed it.
This left a hole in the market so to speak and several fragmentary groups have been and gone. The ONE thing that killed them off was the management. This is a new art/science, call it what you will. It’s very much a hearts and minds thing. If people believe then it will work. But if they become disenchanted the backlash is often fatal for the group.
I don’t often say this but I was the Chair of the first ever online society in history. Truly, we checked. This was done at the Open University who had their own servers running their own system. A group of IT students including me got together, entirely online to build a replica of a branch of the students association. The idea being that online branches might one day replace the real branches for some purposes. In the end we had a working group of about 100 people, some disabled and all students of the OU.
Putting lots of very clever heads together we wrote a COnstitution, a Code of Conduct and build an online structured forum which had a Notice Board, Common Room, Pub and Lecture Hall. We had regular online committee meetings and by using the blocking controls of the software we made it possible for non members of the Committee to read the messages in real time but not take part in the meeting. We called it the Viewing Gallery.
What happened to it? Well having created it we didn’t have the faintest idea how to run it. We did all sorts of clever things like having lectures and elections for committee members and other things like that. We also organised real time fund raising do’s and donated the money to OUSA. But in the end there were a lot of dipsutes, people tried to take it over, there was a fair bit of back channel bullying and a hell of a lot of libel. We couldn’t control it. The bullies ganged up and took over the committee. All the sitting members resigned and I decided to go too. After a few months the University asked me what I thought went wrong and I told them. I recommended closure before it got out of hand. That’s how it ended after a couple of very interesting years.
It never occurred to me at the time that what was an interesting experience could actually prove useful in the future!
Sylvia Webb
September 18, 2013
Good luck, Suzie. Having read Andy’s comment, please be aware, ANY group will be made up of individuals who have different ideas on how to run and resolve matters. There will always be infighting, it’s just the way human beans are! Sometimes there are hard decisions to be made, so follow your instinct with what is right. Don’t be afraid to get it wrong ( sure you aren’t!), doing nothing is the worst thing! And things evolve …. So don’t worry about changing tack if this is needed. Best of luck and thanks for all your hard work on our behalf. We’re here when you need us. ((()))
Nadien Lucas
September 18, 2013
Suzie, I for one am so grateful to have found ”Pardon”. I am profoundly deafened, living alone, waiting for a hearing dog….I was generally very depressed, had become introverted. I spent a long time on line, face book, games….then I found ”’Pardon”. Now I know if I need help with anything to do with my deafness, I can just post on pardon & there are always helpful comments from other members. Thank you. x
mjfahey
September 18, 2013
Being one of the earlier members… I was astonished how fast the group grew, and how many people, trapped between hearing and deaf worlds, are asking for advice and support. The group has made a big positive difference in how I deal with deaf stuff in my life. Well done Suzie for getting the ball rolling… I’ll keep doing my job keeping Admin in line for you 🙂
Alison
September 18, 2013
Please can you clarify this statement as it doesnt make sense to me!
*In the end, getting included in the Facebook group which had nothing to do with our ethos “ Spit the dummy” was in the way a turning point.*
Editor
September 18, 2013
Hi Alison, I believe that when Spit the Dummy was set up, a lot of people were added to the group. Many of us (including me!) were very happy to be added, but it might be fair to say the group didn’t apply to all deaf people, and in Suzie and the ‘Pardon’ founders’ case, they decided to set up a group that represented their needs. Hope that makes sense! Ed
Sally Clark
September 18, 2013
I can’t tell you how much the Pardon group has helped me come to terms with my deafness. I first found Pardon 6 months ago and I was desperate and in complete withdrawal and slipping into deep depression at that time, as I had become totally deafened and was unable to wear hearing aids due to chronic ear infection and no longer able to do the job I loved anymore, teaching. Since that time due to help, encouragement and support I have managed to completely turn my life around. Life for me is now looking up. On Tuesday I am having my first BAHA fitted and then the following Sunday I begin my year long course to retrain and become a lip reading teacher. Thanks Suzie and everyone on Pardon :).