I have a hearing loss. No big deal, right? But sometimes it is. Why is hearing loss sometimes embarrassing in a way that other conditions like vision loss or mobility challenges are not?
It really shouldn’t be. Hearing loss is quite common. More than 50 million Americans have hearing loss. This now includes one in five teenagers and 60% of our returning veterans.
In fact, more people have hearing loss, than suffer from diabetes, Alzheimer’s, autism and osteoporosis combined! You probably know several people with hearing loss, maybe even yourself. Yet, the stigma remains.
Maybe it is because hearing loss is invisible. You can’t see it so you don’t know it is there. This makes it easier for people with hearing loss to appear stupid when they answer the wrong question or repeat something that someone else just said. We can also appear rude or unfriendly if we don’t reply to someone’s greeting or request for assistance.
I regularly get dirty looks from people while shopping. I used to wonder why everyone was so nasty all the time, but I have come to realize that they probably said, “Excuse me,” so I would move to the side and let them pass. Since I don’t hear them, I don’t move. They think I am rude and the dirty look is their reply.
I’ve long gotten over it, but recently my soon-to-be-teenager children started getting upset by it. They feel embarrassed that their mom does not behave “appropriately” and brings negative attention to the family. They have started tapping me on the shoulder to alert me when someone wants to pass, which is actually a big help.
Just last week, though, something happened that did make me feel foolish. I was waiting in a long line at the bank but ran out of time, so I left. A piece of paper had fallen out of my purse, but I hadn’t realized it. I was halfway down the block before I finally heard the nice man yelling “Excuse me, ma’am, you dropped this paper.” I only noticed because other pedestrians on the street were stopping and turning to look at me. I felt like a fish out of water and a little panicked at being the center of this unwanted attention.
When he finally caught up with me, the man looked so annoyed, I could only mumble a reply and point to my ears. “I’m so sorry,” I said, “I didn’t hear you.” He just shook his head and walked back to the bank. I’m not sure he believed me since I don’t really look the part. I am 47, not the stereotypical senior with hearing loss. I felt stupid, especially since that piece of paper was not important.
Over the years, I have grown a pretty thick skin when it comes to my hearing loss, but for people newly diagnosed, it can be a tough road. Many people go out of their way to hide it — ignoring it, denying it, and making excuses to themselves that other people are mumbling. In fact, it takes people an average of seven years to seek treatment once they first recognize a problem. It took me ten. That’s a lot of missed conversations and intimacy because of embarrassment. It’s not worth it.
My advice — if you know you have a hearing loss, or just think you might — forget the embarrassment. Get your hearing checked, accept treatment, and continue on with your vibrant and engaging life. There really is no other alternative.
Readers, does your hearing loss ever lead to embarrassment?
Shari Eberts is a hearing health advocate and avid Bikram yogi. She blogs at LivingWithHearingLoss.com
Judy Perry
May 20, 2016
I had a similar embarrassing moment when the cashier in Superdrug forgot to remove a security tag from my shopping. Needless to say I didn’t hear the alarm as I left the shop and was on the other side of the road before they caught up with me!
Living With Hearing Loss
May 20, 2016
Thanks for sharing your experiences. I can relate to that!
Cathy
May 20, 2016
Your invisible illness is similar to mine, with similar stories of people getting upset with us for things that can’t be helped.
I wish the world was filled with tolerant people because sooner or later we all have some kind of illness to deal with. Hearing loss is difficult and must be frustrating at times. With education and awareness we can create positive change.
I hope your teenage children realize what a very special mom they have!
Living With Hearing Loss
May 20, 2016
Thank you Cathy for your kind words and for all the work you do to break down stigma for invisible illnesses.
Maria Ebbeskog
May 20, 2016
Hearing loss is not an illness! How can you call it an illness? Hearing loss is a disability like deafness.
/Maria
Living With Hearing Loss
May 20, 2016
Thank you for sharing your thoughts.
Matt Herold
May 23, 2016
I have spent years working through the embarassment aspect and truth be told I haven’t fully accepted it even still. The reality is the condition really is embarrassing to me on a daily basis. How many awkward moments will I have in any given day when I don’t respond to someone or guess what someone is saying and answer incorrectly? It never ceases to be embarassing in those times, but you can learn to shrug it off as it seems you have most of the time. For me it is times where there’s no way out, like seated at a table with strangers that the embarrassment is off the charts. The solution, or to make things slightly better, is to just be up front about it which will relieve your tension and help other people understand a little better (although most people will still try to talk to you because they simply don’t understand what it means to only hear parts of what is being said).
Living With Hearing Loss
May 24, 2016
Thanks for sharing your experiences. I agree that being up front about it is the only way to go. At least you will feel more relaxed about it. Best of luck to you!
alicia
May 25, 2016
I think this article was insightful and well written. I think you encapsulated what a lot of deaf/hard of hearing people face on a daily basis. I have been deaf for 26 years now as I have been deaf from the age of four, so you would think that I would no longer feel any embarrassment, but alas, though not often, I do.
There is one thing I wish I would stop doing, and I think it is a very British thing to do. I will say “Sorry, I’m deaf”. Why do I apologise?! What am I sorry for?!
So sorry, I did not mean to shout just then. 🙂
Living With Hearing Loss
May 25, 2016
Thanks for sharing your thoughts! Great points.
Harry
May 25, 2016
How could you say those?! But I do agree that it can be embarrassing sometimes when something happens but I don’t realize that something was happening just because I couldn’t hear them.
Living With Hearing Loss
May 25, 2016
Thanks for your comment Harry.
Hartmut
May 28, 2016
Well, I don’t hear … and I don’t have a hearing loss. I don’t walk about proclaiming to be seeking for the lost hearing.
Similarly about vision loss. All of sudden you chose ‘mobility challenge’.
Just be plain and say “I am deaf” or “I don’t hear” or “I have hearing inability.” No big deal!
I am deaf, but not my ears.