I’ve got a friend that’s blind, and others who would never claim to be blind but who have other eye conditions (macular disease, detached retinas, cataracts, …) that leave them seriously sight-impaired. I guess that everybody knows people that are short-or-long-sighted and who use lenses of some kind to improve their vision – and these people would probably be puzzled if you referred to them as even sight-impaired!
I also have friends that are deaf – but despite the fact that the spectrum of their deafness is at-least as broad as the spectrum of vision-impairment among my friends, they’re all, ‘deaf’; in my experience this is the only English word to describe less-than-perfect hearing that’s in common and generally accepted use. And I think that it’s a big shame because, in the same way that we adapt our behaviour in different ways to suit the various degrees and kinds of sight-impairment of the sight-impaired people that we meet, so we should adapt our behaviour according to the needs of the deaf people that we meet – but they have no words with which to quickly communicate their needs!
If someone tells me that they’re blind then I won’t try to show them photographs or expect them to read a computer-screen; if they tell me that they’re short-sighted and have forgotten their glasses I immediately know to bring things closer for them – and if they have cataracts I can work to avoid having them need to look towards bright light-sources – all simple, but very different, day-to-day strategies that I can use to fulfil others’ needs with but a few words passing between us.
BUT, oh so different if someone tells me that they’re deaf – they could be anything from like-a-doorpost-drop-a-bomb-next-to-me deaf right through to slightly-fuzzy-ears-getting-old-avoid-noisy-background-but-otherwise-OK deaf – and there are no objective and generally accepted words in common use that quickly convey either the degree or the kind of someone’s deafness.
I sometimes wonder if this is how deafness has managed to be come a joke – short-sighted people don’t think of themselves as blind but do think of themselves as short-sighted (and generally do something about it) and fuzzy-hearing people don’t think of themselves as deaf (while their friends and relatives often do) but – because they haven’t got a word for it that doesn’t carry the emotional impact of, ‘deaf’ – they reject the idea in its entirety, leading others to see them as a bit stubborn, out-of-touch, grumpy and stupid – all of which then get associated in their minds with the, ‘deaf’ word and open the field to joke-making and prejudice.
I’m probably in the minority on Limping Chicken because (other than maybe some early old-age-fuzziness) I’m wouldn’t describe myself as deaf. I’m certainly in a minority in the hearing world because my circumstances are such that while the vast majority of all my dealings are with hearing people I have close dealings with a few deaf people – people whose deafness covers a very broad spectrum of degree and also a wide range of types – and so think of myself as reasonably deaf-aware – not through any special virtue on my part but simply through personal experience.
This leads me to want to do some gentle evangelism on behalf of deaf people – encouraging, ‘hearies’ to understand and use strategies appropriate to interaction with, ‘deafies’ … but that’s made so much harder because (in English) everybody’s either ‘hearing’ or, ‘deaf’! If deaf-aware little old me gets irritated when some deaf colleagues ‘ignore’ my call while other deaf colleagues (same word, different condition) turn at my call so that they can then lip-read our conversation, then what chance do others who’re less aware have of understanding the differences!
Sorry, no solutions … but I hope that seeing the problem described from a hearie’s perspective at-least helps ‘deafies’ to see where hearies might be coming from when they’re less-than-understanding and so helps you to work on ways of economically expressing your deafness and your needs to those that you come into contact with.
Paul Gribbin is a semi-retired mainframe computer programmer who lives in the East Midlands. When he’s not computing he enjoys short walks – nothing over five miles please – accompanied by various dogs and grown-up children; these always seem to end up at tea-shops and pubs. He also likes reading (mostly science fiction) and during his brief acting career he once appeared as 4th Pleb in a school production of Julius Caesar.
The Limping Chicken is supported by Deaf media company Remark!, provider of sign language services Deaf Umbrella, training and consultancy Deafworks, the National Deaf Children’s Society’s Look, Smile Chat campaign, and the National Theatre’s captioned plays.
barakta
July 23, 2012
I think one distinction between being hard of hearing say due to age related loss (presbycusis) is that where spectacles will correct short (or even long) sight, hearing aids do not entirely correct hearing loss or impairment no matter that the cause. That is why hearing impairment is counted as a disability in legal terms whereas being short or long sighted isn’t unless it is extremely severe and not correctable by optometry.
There are many people who are visually impaired who can see photographs on a screen, but may need to zoom them in, or look at them from different angles to make sense of them. I think as with anything and anyone the best thing to do is ask “If I have a photo is it something I can show you, or am I better off describing it to you or both?” or similar.
As for deaf awareness, again, everyone is different. Some people may hear a call, others may not, or in my case may hear some calls some of the time from some people. Some things are good practice for everyone like identifying a method which works and giving a bit of pre-amble before talking or whatever communication method is being used.
Robert Mandara
July 23, 2012
Ah! A subject close to my heart! It’s not just the hearies that find it confusing and frustrating but the deaf too.
I think hearing people tend to assess how deaf someone is by how well they appear to manage socially and/or succeed academically. Because I appear to manage well, my friends and colleagues underestimate how deaf I am.
How can we make it clear how Deaf/deaf we are?
Decibels/Audiograms: On some deaf websites, respondents will state the numbers on their audiograms with their signature. That helps only if people understand audiograms and dB – most people don’t understand them either at all or well enough. Two people can have almost identical audiograms but cope in very different ways – not least because one might wear hearing aids and the other might not.
Percentages: Some people like to say that they have XX% hearing. You CANNOT express hearing as a meaningful percentage and even the deaf charities are guilty of this. Does a person with one working ear and one deaf ear have 50% hearing? I’d say he has virtually 100% hearing even with half of his ears missing.
Words: Besides “Deaf”, “deaf” and “hearing”, we also have “hearing impaired”, “partially hearing”, “partially deaf”, all of which mean different things to different people. We need more effective words to cover all of the bases.
Simulation: If hearing people could wear some headphones which attenuate and distort frequencies to emulate what the specific deaf person is hearing (with or without hearing aids), I think they would get the most accurate view of the situation. Is anyone working on an idea like this?
If I could wear a T-shirt showing how deaf I am, I really don’t know what I’d put on it. Do you?
Eloise
July 23, 2012
I too find it very confusing as a deaf person! I find people look very confused when I tell them I am deaf. They assume immediately that I am 100% deaf, nothing below that.
I prefer to stick to hearing impaired personally. It conveys that I have an issue. But I learnt the hard way that deaf or Deaf are the only words the community wants to use, so got shot down for saying ‘impaired’ because ‘nobody likes that!’
This website seems to be a pretty magic place which brings together people of all backgrounds and different levels of hearing loss without there being huge arguments brewing all over the place.
I don’t feel part of the deaf community. I was never brought up as part of it… nearly all my friends are hearing with just 2 deaf ones who can hear very well with hearing aids like me.
The difference is they can sign. I can sign few things and am trying to learn a bit more, but what is upsetting is that the deaf community is so exclusive. A lot of the time they push people out on a whim… whether it is because someone decided to have a CI or because they don’t have as much hearing loss so aren’t as Deaf as them. And they find it hard to accept others, or make others feel uncomfortable.
I am in the hearing world but I require HA’s for a bit of help. I wish more deaf people would see that the three words, deaf, Deaf and hearing aren’t sufficient enough for conveying a wide range of hearing losses.