The Secret Deafie is a series of anonymous columns written by different writers. Today’s Deafie tells us about a life-changing decision she had to make.
It was a very bad day in audiology today. Not for me, but for a girl who looked to be the age of around six or seven waiting with her mother to go into an appointment.
“Mummy, please let me have the pink hearing aids,” she said, swinging her legs off the chair. She was pretty with brown, slightly curly hair which came past her shoulders. Her mum was also quite pretty but oozed pretentiousness throughout the situation.
“I promise I’ll be a good girl,” she continued, “All I want is fairy ears…”
Her mother interrupted before the girl could carry on. “Be quiet, Martha, we need to listen out for your name to be called.”
The little girl sat quietly, still swinging her legs around. She looked at the TV but the mumbling of the news could not keep her distracted for long.
“But mummy, Josh in year two at school has blue hearing aids and says they are like superhero ears! I want to be the same, but with fairy ears! And the nice hearing lady said I could have pink ones if I wanted!”
“Martha, how many times have I told you to be quiet about the fairy ears? You’re a big girl now and you can stick to brown. It blends in with your hair and so everyone thinks you’re normal. Josh’s ears are very nice, but you’re grown up now and all these colours look silly on such big children!”
At this point, I had become so angry and upset at the mother’s attitude that I had to switch my own hearing aids off.
My hearing aids are pink with glitter moulds, blue tubes and butterfly stickers – and I’m eighteen years old. The fact that I can decorate my hearing aids gives me a sense of pride and identity as a young deaf person. It seriously upset me that this little girl could not get the ‘fairy ears’ that she desperately wanted. That small dream would have been in reach had her own mother let her have them.
Instead, her mum, only concerned about appearances, forbid her own child from having the colour and design she so wished for.
To children, having the colour of hearing aids and ear moulds that they want can make all the difference between being confident and proud of who they are or being frustrated. I just wonder whether in the future, this little girl, Martha, will grow up wanting to show her hearing aids, or whether her confidence will be low and she’ll be constantly asking God “Why me?”
Please share your opinions on this situation. What would you say to the mother and the little girl? I certainly know what I’d say, and the mum probably wouldn’t like it!
Do you have a story or experience you’d like to share? If you’d like to write a Secret Deafie column, just email thelimpingchicken@gmail.com
Lianne Herbert
November 19, 2012
Ouch… It looks like the own mother has insecurities! It may have been best to let the little girl see you with your own so she had another role model to look up to. I’ve have to demand for colours that I want as an adult user as I didn’t like the standard colours the NHS has. I’m the one who wears them everyday not them. FACT!
Irene Thornett
November 14, 2013
Great point Lianne! I have just been diagnosed with slight hearing loss and have chosen a smart black hearing aid for my right ear. I’m the grand age of 50!!!
Pity this mother couldn’t have put her own feelings to one side and allowed her daughter to choose the colour of hearing aids she wanted. It would have been the difference between being confident with who she is or being angry and resentful of both her disability and her mother. Sad really:-(
Irene Thomson
September 7, 2016
I now have 2 ruby red HAs, which I bought privately. I’m glad I didn’t go for a beige pair! Hope the young girl now has her “fairy ears”!
Robert Mandara
November 19, 2012
I’m a middle-aged man and, if I care about the colour of the devices on my ears (I do!), then I’m sure it’s even more important to a 6 year old girl. Being given the choice colour gives the patient the feeling that they have some say and control in what is happening to them. Besides, if they choose a colour that they think looks cool, they’re more likely to wear the aids than to stuff them in the back of a drawer.
admin
November 19, 2012
Absolutely, Robert. I’m disappointed that the mother is actually encouraging her daughter to hide her deafness. The more she does this, the more the little girl will think being deaf is something to be ashamed of. The psychological damage will take years to undo.
Irene Thornett
October 27, 2013
Very well pointed out admin. If you are allowed to make such decisions for yourself it can only help you to be more confident in your ability to choose…after all, you are going to be wearing the hearing aid(s), so why shoumdn’t you have the final say?
Irene Thornett
October 27, 2013
I totally agree with you, Robert.
Irene Thomson
September 7, 2016
Update: I am now 53 and after almost 3 years of struggling with NHS hearing aids – more problems than I could have expected – I decided to buy a set privately. I am now the proud owner of a pair of ruby red Phonak Venture 90 HAs. Hope young Martha finally got what she wanted!
deaffirefly
November 19, 2012
All the comments are too right. I would have LOVED blue hearing-aids like Josh when I was younger, it’s great kids today can choose the colour of their hearing-aids but really sad some people still want to hide them. I hope that one day hearing-aids can be as accepted and adaptable as glasses!
iheartsubtitles
November 19, 2012
This made me so sad 🙁 What a fantastic attitude the child had to getting her hearing aids. I don’t think I was so enthusiastic to get hearing aids when I was young. I don’t think mum quite understands how lucky she is there. She must be doing something right in the first place for her child to have such a positive attitude towards getting her hearing aids. Clearly mum is more worried about what others will think versus her child’s desires, but that should not dictate her actions. Easier said than done I guess. I cannot help but wonder – rightly or wrongly – would my parents have had the same concerns had I been given the option of funky colours – would they have been worried that this would lead to jibes/cruel comments in the playground at school? Ironically at quite an early age I had my hair cut short (tomboy!) and so they were visible whatever the colour! It was never a problem, I was teased far more for my height! I wish I could tell this to the mum you mention in the article.
Also, I’ve had the opposite of this, kind of. I am a fully grown adult and now being an ‘adult patient’ have been denied the choice of colours (other than black or boring see through ear molds) and even less choice for the back colour of my aid at my audiology dept. Those ‘other colours’ are only available to ‘children’ in a separate audiology department. *sulks* I told them I thought this was an absurd policy but the NHS is what it is and I’m grateful I get my aids for free regardless.
Robert Mandara
November 19, 2012
Whenever this subject comes up, I always wonder why there aren’t neat snap-on covers for hearing aids. Then I could wear a simple black for an interview or funeral and some crazy colour for a party. How hard can it be?
JK
November 20, 2012
Snap-on covers reminds me Boris Bartkiw, the still-elusive designer of hearing aid attachments:
https://groups.google.com/forum/?hl=en&fromgroups=#!topic/bit.listserv.deaf-l/YapaCY5C0v0
boris bartkiw
February 1, 2013
Elusive no more……though it’s been a while since those hearing aids.
Sorry I was hard to track down back in 1991! Strangely enough, I was recently thinking I should try again to do something with that clip-on hearing aid idea. I couldn’t get manufacturers interested back then – maybe now is a good time to re-start it.
JK
February 1, 2013
Behold the power of Limping Chicken, hatching Boris Bartkiw after a 22-year wait! Good luck with your new-laid plans for hearing aid attachments. I’m sure modern developments, such as 3D printers and the design community’s growth, will make it easier this time to create and promote your ideas.
sgrovesuss
November 19, 2012
This girl’s mom sounds like me…10 years ago. I wanted nothing to do with flashing hearing aids. Denial was my first name, as I pretended to hear everything. But I wasn’t doing myself nor those around me any favors.
I created the Lipreading Mom “Show Me Your Ears” Campaign to stop pretending and hiding my hearing aids. There are many, many photos of people’s ears, hearing aids, cochlear implants…and pet ears. Check it out at http://LipreadingMom.com/Show-Me-Your-Ears.
Kayla Kidwell
November 19, 2012
This is SO sad!! 🙁 I”ve worn hearing aids since I was 8 years old. (I’m now 21) From age 8 to 18, I had beige hearing aids with the clear ear molds. Now, I upgraded to Dual Connects, (in 2010) and they’re PURPLE ones that you can bearly see. When I was picking out the color for my Dual Connects, my grandma wanted me to go with brown, but I wanted purple. She asked my audiologist how much it would cost to change the color, (i can’t remember how much it was) and in the end, I got to pick purple, because I told my grandma that “nobody would see the color but me!”
I think this girl’s mom should’ve let her daughter pick the color of hearing aids that she wanted. She sounded like she had a confident attitude going into the appointment, but her mom made her confidence go downhill…so sad!!!
barakta
November 19, 2012
I find this attitude v sad. As a child I had alive-band style bone conduction hearing aids (I was the last user in my county) and my mum would wrap coloured ribbon round the band do they were less boring. My friend asked her mum why she couldn’t have alice-bands like mine, not realising they were a hearing aid which in ways was great cos it gave me a positive difference.
I was very pleased when I went into BAHAs in 1992 and they were BLACK! Which suited me as a baby goth-wannabe. Sometimes audiology would have to give me light brown BAHAs due to stock issues and that was always horrid cos the children at school would bully me for it (more than the usual high baseline) and call me toffee-ear. Hated it and would get them exchanged back for black as soon as possible.
Many of my adult deaf friends have coloured hearing aids, earmoulds and one puts coloured rings around the tubes of her hearing aids which looks very cool indeed.
Georgie Robinson
November 21, 2012
I can only hope that the young girl learns to stand up to her mother once she enters her teens (because let’s face it, how many teens don’t try to deviate from their parents’ advice?) and has whatever she wants on her hearing aids. I will cross my fingers that she goes to town with glue and some diamantes when her mum’s not looking!
Irene Thornett
October 27, 2013
So sad that this mother allowed her “shame” at having a child with a degree of hearing loss to react in such a negative way.
I am 50 and have been told I have hearing loss. When I attend my appointment to have my hearing assessed more thoroughly, I am going to ask whether I need hearing aids, and if so, I will be askng for any colour except beige!!!
By acting in the way she has, she may be doing more harm than good – her daughter may decide that the aids her mother has forced her to use are ugly and may refuse to use them when she gets older. Her attitude may also cause her daughter to lose her self esteem, which will also cause her problems with socialising.
Surely this mother could put aside her own prejudices for he sake of her daughter’s well being and happiness?
tanya
March 7, 2014
I probably would have been escorted away after going off on the mom. I am a 34 year old woman and I am getting glittered ear molds and a pink hearing aid, I figure I’m going to rock my favorite color on my ears.
Irene Thomson
September 7, 2016
HAs anyone heard what happened to little Martha? Did Mum manage to out aside her prejudices and allow Martha to have the HAs that SHE wants?