‘I have never felt that anything really mattered but knowing that you stood for the things in which you believed and had done the very best you could.’ – Eleanor Roosevelt.
Lately, I’ve been thinking about how people come together to make changes in society. Specifically, about how the Deaf community in the UK has rallied around the campaign for a BSL Act.
For three months, we sent letters and emails to MPs to ask them to support EDM 1167, an Early Day Motion aimed at making the government do more to support BSL users.
Meanwhile, the aim of the BSL Act campaign, which is being driven by a Facebook group, is to give BSL (British Sign Language) legal protection and reinforcement as an official language of the UK.
This would mean that public bodies (such as the NHS, Police and GPs) are legally obliged to provide interpreters, and hopefully other means of access (such as Speech to Text Reporters or lipspeakers) to deaf people around the UK.
As it stands at the moment, access is still incredibly patchy and in some places non-existent; with apparently booked interpreters not turning up (or not having been booked at all), and many other issues, such as poor deaf awareness, relying on family or friends to interpret (not ideal) or poor support within education settings.
Mostly though, I want to focus on how social networking has created an opportunity for deaf people to express themselves, to share stories, to campaign and rally around a cause more effectively.
What worries me is how there often appears to be a split within the very foundations of the deaf community, or what I consider the ‘deaf collective’ – as not all of us are involved in what is called the ‘big D’ Deaf Community.
I support everyone’s right to access and consider the BSL Act a brilliant step in the right direction. However, I’ve noticed that people who consider themselves ‘little d’ deaf or hard of hearing, or partially deaf, often feel that if they participate in the ‘big D’ Deaf Community it somehow means that their access needs are not being met.
In some cases, people seem vehemently anti-BSL, as if the language itself is to blame for lack of access, or they feel it is incorrectly seen as the only way deaf people communicate, therefore somehow discriminating against ‘little d’ deaf people.
The access tools that I use, like subtitling, captioning, Speech to Text Reporters, lipspeakers, SSE (Sign Supported English) and so on, are the access needs that ‘little d’ deaf people and hard of hearing people feel are being eclipsed by the perceived prominence of BSL.
These access tools are equally essential as part of the access spectrum for all deaf people (including BSL users), and it worries me seeing that people are so divisive with each other.
Instead of division, our voices (and hands!) are so much stronger together. Especially in a time when the government is attempting to erode our civil rights, take away essential benefits, and are attacking the access needs of deaf children in education.
We all have different identities and ways of seeing the world. I feel no conflict between supporting a BSL Act and supporting subtitling and captioning, for example. They are two sides of the same coin. They are both essential.
That is why it troubles me when I see arguments, unnecessary vitriol and negativity in Facebook groups and comment threads that don’t move anyone forward or contribute to change.
The same arguments and divisiveness have existed for as long as there have been deaf people. When you look outwards, and wonder how it looks when we are trying to raise public consciousness about deaf awareness, this is not an ideal image of the community (or ‘deaf collective’).
What people need, to put an agenda forward – for all forms of access and for the BSL Act – is unity, tolerance and the ability to listen to each other.
Too many voices shouting over each other won’t mean we’ll all be heard – it means that we’ll muddy the waters for each other.
I think everyone should have a chance to speak, and then people need to work towards a solution that incorporates all means of access, as well as gaining recognition for BSL.
Instead of becoming prickly whenever someone mentions BSL (or even speech/lipreading), and saying ‘well what about me?!’ we should all listen to each other, instead of becoming defensive and judgemental. Listening requires patience, and learning from each other.
Intersectionality is not about choosing one or the other aspect of who you are to fit in. I’ve come to the realisation that people like me and my sister can hold seemingly contradictory elements and identities within us – such as an appreciation of BSL, deaf culture and deaf pride – and text and speech based methods of communication:
‘Do I contradict myself? Very well, then I contradict myself, I am large, I contain multitudes.’ – Walt Whitman.
We need to recognise that we are stronger together – no matter how you define yourself, no matter your deaf identity – and that we can campaign for everything that matters to us together; whether we are women, men, gay, disabled, deaf, from a different culture, a person of color, trans.
We are all stronger together. Everyone has their own opinion, everyone has a story, and they all matter. I feel that listening and respect are key. Working towards unity and therefore collective activism.
Lizzie is a writer, blogger and Deaf Unity’s editor. She always has a few writing projects on the go, including writing her first few novels. Passionate about campaigning and the possibilities of social networking, she hopes her work with Deaf Unity will encourage more people to strive for their dreams and push through the barriers within society. A passionate bookworm and sci-fi/fantasy geek, you can read more on her blog, Cats and Chocolate and follow her on Twitter as@destinyischoice
The Limping Chicken is supported by a range of charities and organisations linked to deafness, all of whom offer services that enhance deaf lives. Click on the images on the right-hand side of this site or go to our Supporter’s page to find out all about them!
Andy not Mr Palmer but another one
May 24, 2013
Lizzie, I am afraid you missed the point entirely. Most deaf people are NOT against BSL. What they are against is the one-sided campaigning that portrays BSL as the only way by which Deaf people communicate.
This is simply not true. The situation is made worse by misguided people who constantly bang on about BSL as the language of Deaf people while carefully ignoring the fact that the vast majority of deaf people do not use BSL.
The result of this has been twofold. One it puts hearing people off employing deaf people. This is because they think there is going to be a lot of hassle with sign language terps and people having problems speaking to them. Running a business isn’t a game, it is a deadly serious process and the penalty for failure is bankruptcy and oblivion. Therefore most hearing people won’t take the risk of employing someone who, no matter how good their qualifications needs a lot of support and help.
Even more insidious is the idea created by many, many articles in the Press about signers that REAL deaf people sign. Those who don’t are not really deaf.
This happened to me as a matter of fact. I don’t sign because there are no other signers in my area. Not because I think it should be banned or any other reason. Just nobody to talk to. But when I went to an Open University tutorial the tutor met me and I spoke to him in the normal way. However a few months into the course I had an accident and was unable to finish my current assignment in time. The tutor >refused to mark my paper< even though my problems with contacting him were caused by my lack of hearing.
I was forced to complain, it totally ruined my course and I had to repeat it a year later. The tutor was disciplined but it became obvious for the remarks he made that he didn't think I was really deaf because I can speak and don't sign!
And that is the problem we are facing now. Deaf people bang on endlessly about sign language, day in day out. Anyone who dares to disagree is attacked and bullied mercilessly. Nobody is allowed to criticise the Great God BSL.
Until the Deaf side of the community wake up and smell the coffee the far, far larger contingent of non-signers will continue to use oral methods and to shun the signing bullies. They have only themselves to blame.
barakta
May 24, 2013
I’m sorry to hear how you were treated by the OU tutor, that’s appalling and they should have recompensed you more for it than they seem to have done.
I do however feel that anecdotes and personal experiences have painful resonances all round – I know of deaf people who’re discriminated against for not being able to ‘speak more normally’ and have been dismissed, ignored and belitted for that – where deafie-speech has held them back as being judged as stupid etc. We could trade anecdotes all day and not do anything except hurt one another. Or we can find a way of trading anecdotes and listen to one another’s experiences and see how much in common we have as well as not in common and recognise that what doesn’t affect us which can still hurt others.
Those of us who can speak and have some hearing to follow people in speech have a privilege we should not ignore – it doesn’t make us better or worse but it means that we can silence BSL users by being more acceptable to a majority hearing world and closer to a normative status quo. We should tread carefully in BSL space as it’s often the only space BSLers have in a world which doesn’t have much BSL in it outside of certain spaces. I personally am sick of being patted on the head and told how well I speak when culturally and behaviourally I am way more like BSL community people than not.
Those of us who sign confidently and can own a deaf identity have a different set of privileges that they should not ignore, remember that those who don’t sign can find the whole culture and community quite intimidating and not know how to find a place we can fit in. Remember BSL classes are very expensive and hard work and often inaccessible for people. Remember that non signers are just as valid as deaf people and have just as valid an identity just different.
jayne
May 24, 2013
Lizzie is right, in my opinion. The split is plain to see for anyone involved in the deaf community and is getting worse. The big D little d “rule” has made things even more split. When we deaf people realise that the power is in numbers? Marginalising people based on extent of hearing loss does nothing to empower the whole.
Andy, I fully support your viewpoint too. As you may have seen from my comments on others posts here previously, I do think BSL users in particular can be “elitist”. Until we all join together in one cause – equality for all, then we won’t get anywhere.
Liz Ward
May 24, 2013
Thank you, I’m glad what I’ve written resonates with you. Agree with your comment too! 🙂
Liz Ward
May 24, 2013
Hi Andy, I agree with barakta below – I’m sorry you were treated so badly by your OU tutor. However, I didn’t say anywhere in my blog post that all deaf people are against BSL. It is my opinion of how we might move forward as a community – how important it is to learn from each other and listen – all of us, not just BSL users or deaf people who don’t sign.
I don’t want to invalidate anyone’s experiences, because like I said, we all have stories to tell, our own cultures, our own perception of the world. Yet we can be powerful as a whole, when it comes to campaigning for access. Mostly I’m talking about a few people (perhaps a very small number) within both aspects of the community who seem to have a narrow minded perception of identity.
There are bullies on both sides – and despite my supposedly ‘oral’ identity, I’ve been bullied by people who consider themselves oral deaf people too. I get it, I really do, and my blog post of course doesn’t discuss everything (to do that I’d have to write a book!), but I’m coming from a place where I have learnt so much about deaf identity, deaf culture and deaf experiences – just by listening to people.
barakta
May 24, 2013
Word.
Especially the stuff about listening to both sides and learning so we try and remember things which broaden not narrow our narrative.
Individually I have never found anyone who doesn’t feel a bit “feet in two worlds” (at least) about deafness and communication – even those who seem on the surface to be hardcore one way or another.
I also think we need to remember not to blame different-deaf-people groups/types/communities for discrimination that we as individuals have faced (from hearing or deaf or Deaf) cos of misunderstandings of deafness.
Liz Ward
May 24, 2013
Yes that’s true – most deaf people I meet are often somewhere in the middle. I find it so interesting how people navigate deaf identity 🙂
Thanks – I’m so glad this post makes sense! 😉
Mike GulliverMike
May 24, 2013
I’m not sure if this is the done thing, but I wrote a comment here, and it turned out a bit too long… so, rather than fill Limping Chicken full of historical parallels that might only be interesting to me, I posted it as a blogpost, at http://mikegulliver.wordpress.com/2013/05/24/deaf-unity-a-rather-historical-response-to-lizzie-ward/
I shan’t be at all offended if this gets moderated out.
Editor
May 24, 2013
No probs thanks Mike!
Liz Ward
May 24, 2013
Hi Mike – have left a comment on your blog. Thanks, lots of interesting food for thought there! 🙂
Andy not Mr Palmer but another one
May 24, 2013
Once again the message has been misunderstood. My anecdote was intended to illustrate that even the Open University didn’t understand that not all deaf people sign. These are people called Doctor and Professor. They should be bright enough to work it out for themselves.
There ISN’T a divide in the deaf world. There are people who sign, people who speak and people who do both.
ALL the noise is coming from the people who sign, a very tiny number, perhaps a few thousand out of millions of deaf people. The rest of the deaf world gets on with its business and lets the minority do all the shouting.
If the BSL Act were to be framed as the Deaf People’s Act and protecting sign, lipreading and hearing Deaf people then it would stand a chance of success. It would have 2 million supporters instead of 20,000.
Things are about to get even more complicated. Thanks to the CI we now have Deaf people who sign, speak and hear quite well.
Has anyone spared even ONE thought for them?
Liz Ward
May 24, 2013
Andy, again, yes I have thought about everything, I have friends with CI, friends who sign, friends who are oral. I’m not a BSL user generally speaking, in fact for me BSL is a recent thing even though I’ve found signing helpful for me throughout my whole life. I have seen arguments erupt online on both sides creating division, and I have been in situations where I have felt excluded from the Deaf community myself at times. I’ve also been excluded in the hearing world, and haven’t had an easy ride! The media does make assumptions about deafness but that is why The Limping Chicken, deaf bloggers and social media users are seeking to redress the balance.
There is a very real division, and yes, not everyone pays attention to it or is part of it, but it is still there. Each to their own, you’re entitled to your opinion, but I stand by my own opinion and thoughts on the matter. It took me a lot of dithering (and courage!) about whether to share this but I think people need to talk about it. Otherwise Charlie wouldn’t have said yes to putting this post up.
Andy not Mr Palmer but another one
May 24, 2013
Here is a classic example of what I mean. There is absolutely nothing wrong with it as a newspaper feature. However it is tragically unbalanced.
http://www.guardian.co.uk/lifeandstyle/series/g2-deaf-issue
Bearing in mind that it is the employer class who read the Guardian, what will they think all deaf people expect when they start work with them?
Liz Ward
May 24, 2013
I know what you mean, but like I said, my post is not about redressing the balance of bias and lack of full representation in the media, it is about ideological and social divisions within our community, and how we can address that. It is all connected, I’m fully aware of that, but if I tried to tackle everything at once in one blog post, it would probably not do the subject justice. I’m a Sociology graduate so I understand that the media, government and social systems and the ideological roots underneath them are as much to blame for inequality as divisions within a diverse group of people (such as us, deaf people). I’m not suggesting that we as a community are responsible for our inequality! Just that we should recognise our strength together when it comes to campaigns such as the BSL Act or the NDCS’s Stolen Futures campaign or the new group set up by Melissa Mostyn re. Welfare reforms. Traditional media is often a long way behind websites such as this and other excellent blogs working to raise awareness of what it means to be deaf (and oral). At the same time, equal representation of all types of communication in the media doesn’t mean that some hearing people won’t still have their own prejudices or ideas about what being deaf means. We do have to make the effort ourselves in some instances to explain that not all deaf people sign, but equally, sign language is
Liz Ward
May 24, 2013
…sorry about that! Sign language is just as valid a means of communication as speech.