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I am a hearing individual with a big deaf family background.
I received a text message from my Deaf father at the weekend with the term ‘’Pls hurry – your grandma operation now surgery what for – No interpreter’’.
Of course you can imagine, an 86 year old deaf lady having being forced to sign a consent form giving them permission to take her into surgery there and then to operate on her eye, is not the best really is it?
So there I was, stuck in traffic, panicking that they’ve thrown her into surgery without actually having taken any previous medical history, no interpreter and my dad, at his wits end… This has got to stop.
After huge parking issues, rushing through A&E, grabbing lifts and having no help from most members of staff; I’d finally arrived at the ward in which I found my father with his head in his hands. Not a sight a daughter wants to see as you can probably imagine. So I’d grabbed his attention and his story was:
“Mum was complaining of an itchy eye so faxed me. I drove over and saw her eye was cloudy looking and so decided to take her to A&E. I texted my sister to book an emergency interpreter which she’d confirmed she had done. We then waited at the hospital for the interpreter which didn’t show up after a couple of hours and so we then asked one of the members of staff at the hospital to book an emergency one because it would be their responsibility to do so anyway. They had then gone away for a long while and in the meantime I had texted you (myself), this was all too familiar to me so I just thought it would be easier to text you. Once you’d got my message and replied I knew it would be ok after you’d arrived. All of a sudden, they’d come out, made your grandma sign something and took her away from me. In the meantime, you had arrived and that’s when you took over.
That was just the story brief.
What had actually happened was, after my dad doing all of this for his mother, the surgeon and nurses took it upon themselves to force this woman to sign this piece of paper knowing full well they have not asked for any historic medication, no GP details, just a signature.
My grandma actually suffers from type 1 diabetes, takes several types of medication to ensure her diet is in control, suffers from very high blood pressure and yet to top this all, she is 86.
Once she was wheeled out of surgery, you can imagine she was pretty hazy. I let her sleep off the anaesthetic and meanwhile spoke to the nurse and surgeon to hear their side of the story.
The nurse’s statement was:
“Your grandmother came into the hospital complaining of a sore eye and having bad vision. Your father was the lip speaker throughout and I have a level 1 in BSL so I understood him well enough to explain the implications of what we need to do for your grandmother. I had taken her blood pressure to make sure it was ok enough to give the surgeon the go ahead and take her in. I had tried to book an interpreter, and when your father’s original one hadn’t shown up, someone from the agency said they’ll be with you within the hour. Because they didn’t show up and we were running out of beds, your father seemed happy enough for us to just take her in. He was smiling a lot of the time which led me to assume they were both happy with it and so we took her in.”
The surgeon said:
“Your grandmother’s surgery went very well, she may have a few issues now she’s had her cataract done such as infections, weeping eye, maybe even pain. If this is so, she must go to her GP for treatment. The reason we hadn’t had an interpreter? I am not aware of this as I am just the surgeon. I am given a job to do, I do it. Will that be all?”
As you can imagine, I was absolutely LIVID. She’s had surgery, no pre-op discussion, no medical details taken, ‘’your father can lip-read’’, ‘’I have level 1 BSL and explained the implications.’’ ‘’Your dad was smiling.’’ ‘’I am just the surgeon.’’ ‘’Will that be all?’’ I have actually come to the conclusion that NHS just do not care.
I have spoken with the agency that were ‘booked’ by the nurse, they have no record a call ever being made to them otherwise would have supplied a terp.
My auntie’s interpreter which was booked through a certain company hasn’t got back to us as to why a terp never attended.
I have actually just come to the conclusion that no matter what happens, unless I book them myself through my most trusted company, I shall interpret myself.
It shouldn’t be this way. Is it not enough what CODA’S do enough for their family growing up? Why are we still moaning about deaf people needing support and having equal rights? I don’t understand it.
Yet again, another depressing whinge from my side, not just as a family member but a terp too.
HELP.
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Natalya D
June 16, 2014
Whoever taught that nurse BSL level 1 clearly did not ensure it was stressed that it was irresponsible for her (or any other BSL level 1er) to even try and have more than a very basic BSL conversation without an interpreter… Also wtf re the smiling, your dad sounds like he was using the deaf-nod, desperately trying to smile to get the hearies to keep on communicating rather than give up.
I am sorry it has come to always having to be you as the CODA. This is why I use my partner as communication support (repeating, lipspeaking, SSEishing) cos I can’t rely on hospitals getting anyone else and they would assume cos I don’t sound deaf that I am less deaf than I am. This is a huge problems with hospitals and absolutely needs to stop.
I hope you are able to get this hospital to understand that they have been negligent and that every member of staff is responsible for ensuring consent is informed not just the frontline ones. Not calling the agency is really naughty if they have said they did. PALS may be worth contacting as every written complaint has to be noted down.
Also the agency your dad contacted is bang out of order as well, if they promised a terp they should provide a terp or update the client on reasons why they can’t comply.
I hope your grandmother is OK now and has been fortunate enough not to suffer any complications or any further uninformed consent incidents.
Tim
June 16, 2014
With type 1 diabetes if the choice is to wait for an interpreter or sign a consent form for immediate surgery, I would sign the consent form every time. If they want to operate immediately, there is usually a good reason.
Retinal detachment, for example, is a medical emergency and minutes count. The sight that is lost when the retina peels away is often lost forever.
“I have actually come to the conclusion that NHS just do not care.”
Well, I have come to the exact opposite conclusion. The NHS is often played off against perfection and nobody is going to fare well when that happens.
Angela Lindsay
June 16, 2014
Excellent case for BSL Act.
SignHealth
June 16, 2014
We are livid with you! We are campaigning hard to stop situations like your family’s from occurring. If you want to make a complaint, we have a page online that informs you how. Good luck for future appointments. http://www.signhealth.org.uk/2360-2/
Ann
June 16, 2014
I’m sorry to read your story, it sounds horrific. I hope you have been able to complain to the hospital (via pals) so they can reflect on your experience and take action.
Annabel
June 16, 2014
You should definitely complain, in writing, in the strongest terms to the hospital director.
Katy
June 16, 2014
This really should be brought to the attention of the Care & Quality Commission (http://www.cqc.org.uk/contact-us) as this is a breach on many levels. Every hospital has to meet the national care standards which involves being kept informed, which clearly did not happen here. Very sorry to learn of this shocking event – you must be so very angry with them. Please do take this further – it should never have happened. I do hope your grandmother is recovering well.
http://www.cqc.org.uk/sites/default/files/documents/20121126_isl297_11_what_you_can_expect_from_your_hospital_lo_res_final_26nov2012_easy_to_read.pdf
Hartmut
June 17, 2014
This is a system problem that lies within institutions and government that thinks subconsciously, deaf people do not exist, and whenever a deaf person pops up in their offices or treatment rooms, he just needs a bandaid solution, instead of seeing it as a systemic problem, calling for a systemwide solution or solutions. The most successful solution must become institutionalized.
Hartmut