All Africa website has reported on the problems Deaf people have accessing HIV information in Zambia, a country that prides itself on its HIV information services.
The article tells the story of Faith, a Deaf woman, and also explains some of the background – with disabled women Zambia “particularly vulnerable to abuse and abandonment since they are often dependent on others for care and support.”
This article is well worth a read.
Extract:
Faith learned she was HIV positive two years ago, after giving birth to her daughter. The Zambian government prides itself on its HIV prevention outreach, and every pregnant woman is supposed to be tested for the virus, to prevent passing it on to their babies. But Faith, now 25, is deaf, and was never tested before the baby was born. Nor did she receive even basic information about HIV.
If people who are deaf don’t bring their own sign language interpreter to health clinics, they are unlikely to get information. Even when they do, they are often greeted with stares by other patients and negative attitudes from some health workers. Now, Faith is on HIV treatment, but it’s a struggle. Her 2-year old daughter is positive too, which might have been prevented if Faith had been tested before the baby arrived.
An estimated two million people with disabilities in Zambia face significant barriers to HIV prevention, testing, and treatment, according to a new Human Rights Watch report, “We Are Also Dying of AIDS.” Zambia is a regional leader in providing HIV services.
Yet because people with disabilities in Zambia are often seen as not engaging in sex, they are often excluded from community gatherings where government workers or nongovernmental organizations hand out condoms or educate people about the virus.
To read the full article, click here: http://allafrica.com/stories/201407160917.html
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Natalya D
July 17, 2014
Sounds very similar to the UK in the 80s and 90s. My BSL tutor told us a fair bit about “information deprivation” especially around HIV and then the more recent stuff flagged up in signhealth. I believe (but don’t have stats to hand) that the UK deaf communities saw more than their fair share of HIV/AIDS because of low education and awareness levels. Part of my BSL tutor’s teaching was to encourage us to share info about important health with deaf people so they didn’t end up out of the loop.
The whole social judgements about who is and isn’t and should and shouldn’t be having sex morality around HIV in Africa and worldwide has caused *so* many problems, disabled people, sex-workers, LGBTI people etc will be vulnerable and lose out.
Disablism (audism), it kills.
sflmac
July 17, 2014
Come on! Just pick up HIV brochure and read and learn. I was in science class early 1980’s where there are very few book of HIV so I went to Men’s clinic to pick up brochures and wrote up on term papers and got good reviews on the term papers.
Editor
July 17, 2014
The information may need to be in Zambian Sign Language in order to be fully accessible to Deaf women there. Thanks Ed
Kat
July 30, 2014
Does anyone know of any information about HIV in BSL? I am currently doing some research to help me to set up a project in Tanzania, I am really struggling to find anything in BSL at all! Thanks in advance.
Kat