They’re fiddly, they’re amazing and they’re expensive.
I can think of no other situation when any sane parent would hang £14,000 of delicate equipment off their children’s ears.
But if your child has cochlear implants, that’s what you have to do everyday.
Here in Blighty we don’t have to pay big bucks to buy them, replace them or fix them when things go wrong. We have the NHS and that takes the money pressure off parents who would otherwise be remortgaging at diagnosis and having financially induced panic attacks at every shake of the head.
Thankfully for our kids we’re not in that situation but in order to save the NHS from further financial problems, here’s a guide to the seven biggest risks to your child’s cochlear implant processors.
1. Sweat
Kids run about. Kids sweat. But cochlear implants don’t like moisture and many will stop working if even a teeny drop of kiddy-sweat gets inside them.
The best way to protect against another long drive to the implant centre? Ear Gear are cheap protective covers for hearing aids and implants. Cost £16. Saves thousands.
2. Throwing it in a fit of rage
The worst injury I sustained from a flying cochlear implant processor was a cut on the nose.
The ‘Little Lord’ strapped into his child seat wasn’t happy about something. I can still hear the ‘NO’ he shouted as he whipped the device off from behind his ear and in the same motion threw it at my face.
It was the sharp switch on top that did the damage to my nose.
Solution?
Keep your guard up when cochlear kid isn’t happy. I looked in the rear-view mirror and watched the blood trickle down my nose. ‘Good arm, lad’ I said to myself.
3. Shopping trolleys
You’ll think I’m making this one up but it’s true. We lost an implant processor once (sorry taxpayer) because a shopping trolley whipped it off my son’s head in a supermarket collision and then rolled off before we knew what had happened.
For the uninitiated – cochlear implants have a magnetic transmitter on them which will stick to metal, including a shopping trolley with a mind of its own.
I still haven’t forgotten the incredulous look on the face of the lady at the implant centre as I tried to explain that one. ‘This is the last time, Mr Palmer’ she said.
When the kids get a bit older, its good to give them a bit more responsibility in taking care of their own equipment – prepare them for independent life.
Well, WATCH OUT if you do because if you’re not making sure those very expensive cochlear implant processors aren’t in the washing bin – who is?
The unique thing about watching a cochlear implant processor rotate in the washing machine is the way the magnet sticks to the drum at the back and the processor, hanging by its wire, gets repeatedly dunked in the soapy water with the dirty football kit.
Amazingly, after we pulled it out, it still worked! A drop of sweat causes a total malfunction but a 15 minute spin in soapy warm water is not a problem.
There’s a golden rule – other (normally un-deaf) kids are not allowed to touch the cochlear implant processor. Ever.
They are not allowed to motion as if they are about to touch the implant processor or talk about touching the implant processor.
They are not even allowed to think about touching the implant processor.
Nothing good can come from a six-year-old girl pulling the processor off my son’s head. The fewer children getting thier mitts on it the lower the risk. One is quite enough.
Establish a clear boundary about this early on as part of the new friend induction procedure. Touch it and you’ll be sorry.
To me, there always seemed to be something completely pathetic about telling my son’s teacher that I had lost his processor.
It reminded me of being in one of my first jobs as a reporter and losing the case of the office camera.
My editor at the time, the mini-dictator that he was, made me scour the town looking for it; embarrassingly revisiting every place I had been that day asking if anyone had seen my camera case.
It felt exactly the same at the school office that day. I was reduced to a slightly wobbly and pathetic pleading teenage airhead again. ‘Hi, my name is Andy and I’m a doofus because I lost a vital and very expensive piece of equipment for my son. Again.’
Remember where you put these things at night, religiously, routinely, rollercoasters.
7. Rollercoasters
Centrifugal force acts on cochlear implant processors like it acts anything else.
On rollercoasters, that force is usually strong enough to overcome the plastic ‘huggy’ that usually keeps the valuable implant processor on the schoolboy to which it was assigned.
‘Nah, we don’t need to take them off’ said the boy as the restraints for the Nemesis descended past out heads and snugly onto our shoulders.
I don’t like to overrule him, better to let him make this call, I thought. He knows what’s what by now.
I wonder if the queuing onlookers detected our frantic panic shortly after the first bend?
There you have it. By taking steps to minimise the risks from the dangers listed above, you will save plenty of time and embarrassment (or money if you don’t have a free health service where you live)
When all said and done, cochlear implants are just very clever bits of electronics and plastic. They are just as vulnerable as any other bit of technology – but that doesn’t mean you shouldn’t have family fun or take a few risks.
And don’t be too hard on yourself if they do go wrong, go missing or end up in the hot wash. It wasn’t as if you applied for the job of cochlear implant protector in the first place, was it?
Update: Uh-oh!
… Great reminder to take care of child's equipment – BEWARE – the NHS can & will charge you! @Limping_Chicken (2/2) http://t.co/6mst6qmb7R
— NDCS Audiology Adviser (@KidsAudiologist) July 25, 2014
By Andy Palmer, Deputy Editor.
Andy is Chairman of the Peterborough and District Deaf Children’s Society and teaches sign language in primary schools. Contact him on twitter @LC_AndyP
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donaldo of the wasatch
July 24, 2014
Simply hilarious. LOL hilarious. And I empathize!. As a child born in 1951, BTE hearing aids were not available with my hearing loss until 1972. So I wored those bulky infernal body aids until I was 21 years old – 1972. Yep, with those molds, receivers and wires, before reaching the actual hearing aids. So issues like sweat, trolleys (shopping carts in America), and what not were never an issue. Losing them – yes! Albeit temporarily. Now that I wear bilateral CI’s there are many situations I will not risk the taxpayer’s or my dole by wearing them. Many of the smaller children here are wearing body style CI for the very reasons that you mention and I would endorse that kind of mind set and caution. You have to learn to love HEADBANDS, But that is another article, isn’t it?
Helen Waite
July 24, 2014
I have never heard of the ear guards till now! Amazing working out at the gym will be so much simpler.
Emma - hörselresan
July 24, 2014
So funny! Dreading the washing machine and toilet bowl, accidents waiting to happen!
I made a little list the other day of places my son’s CI has gotten stuck to, the latest two additions being the handrail on the stairs and the car door. “Mamma, I’m stuck!”
Linda Richards
July 24, 2014
Heard about them getting stuck on the doors on the London Underground…..
VeganDee
July 24, 2014
Brilliant read. Enjoyed it.
sflmac
July 24, 2014
I don’t have CI so I am profoundly deaf guy with great life ( job, spouse and own house) . Life without CI is beauty.
Paul
July 24, 2014
So so true. Not experienced many of them YET ! My daughter has managed to lose one and break the other one in half !! All within the space of 3 weeks. Really didn’t enjoy the phone call to the centre to explain
Annie Max
July 25, 2014
Nice post brilliantly written loved reading
monique
July 25, 2014
Most people not know what is negatywne CI.It’s important negatywne.All doctor won’t explain about negatywne CI.Deaf can anything,school for Deaf,jobs,university,sport and etc.Deaf not dumb.
Anon
February 9, 2015
My 8 year old recently underwent cochlear implant surgery, and was supplied with the latest nucleus 6 (CP910). Over Christmas the family and I were staying at family then before a long drive home the processors were taken off my child and my wife put them in her bag …. Driving on the motor way we could hear a knocking sound, pulled off at the next available junction as safely as possible got out to inspect the car only to find a cochlear stuck to the car door!!!!!! Immediately asked my wife if she has the other one (I went off to inspect the car and the road behind me…) to which the colour dropped from her face after searching her bag….So now my daughter has a CP910 and a “temporary” replacement CP810 Its been 3 months and we are still waiting for the CP910, we are not irresponsible and feel totally embarrassed by this situation, but as a hard Tax Payer feel we should get a replacement like for like and extremely disappointed in the service. For the record my Wife and I have been working from the legal age all the way through to our mid 30’s so I have paid for this device ten fold and more!
Please I am pleading for a replacement CP910 for my 8 Year old daughter, and I promise it wont happen again.
Netta
November 28, 2015
Umm, yes, soooo, my 5yr old lost his device and I’m going NUUUTS!!! AAHHHHHHHHH HEEELLLP!!
Hartmut
November 28, 2015
I heard many stories of deaf adults how they lost” their hearing aids. They INTENTIONALLY lost them, because they hated them. Losing the speech processors is just the same story recycled. People in their audism just fail to recognize the deep meaning behind them.
Sadly, the grief story of losing the speech processor for the wire inside the head illustrates the obsession with hearing. Deaf people have been FINE without those devices since centuries. It is through this obsession, the suffering of deaf people started and has increased by the refusal of acknowledging the legitimacy of deaf people to exist and consider them part of humanity.
This obsession has cost the society the expenses of HA and cochlear implants that deaf people can do away with and instead learn to live with this part of humanity and learn a visual language.
Barriers of communication and access to information produced by the hearing majority need to be removed anyhow, also needed for those wearing hearing prostheses. The obsession of hearing makes this effort frustrating.
The value of hearing needs to be relativized!
Accept and cherish the existence of deaf people!