An often quoted statistic about deafness and hearing loss in the UK is that there are ten million people who have some level of deafness.
It’s normally the first piece of information that’s offered to newbies on the subject.
The intention of using the statistic is to make people consider that deafness or hearing loss is much more common than people think.
The statistic can also be used to present a case to government for increased funding into research, screening programs or other big-money schemes.
‘The bigger the number, the better the chance that policymakers will consider it’, I was told when I discussed the use of the statistic with a campaigner.
So, we see the merits of the use of the statistic; but when the ten-million stat is given even cursory thought, the claim begins to feel, to use some political jargon, a bit spun.
The first time that I was told that one-in-six of the population had a hearing loss, my immediate thought process led me to the large open plan office that I used to work in.
There used to be 150 people working there so if one in six had hearing loss, then that meant 25 should be in some way deaf. I remember that only two were. One was the maintenance man – and that was through ten years service.
Common curiosity or scepticism might mean many more think about the people they know and subsequently reject the ‘ten-million’ statistic as spin, an exaggeration or worse, as an outright lie.
That’s not a good starting point for any charitable ask or pitch to government.
A lie, however, it is not.
It is a fact – although one that is heavily age related and takes some explaining.
Of the ten million, 9.2 million* have a mild or moderate hearing loss, the two lowest categories, while 800,000 people are severely or profoundly deaf.
The vast majority won’t be, for one reason or another, using hearing aids. In fact, only two million – or 3% – of the UK population have them, and of those, only 1.4 million wear them regularly.
Who knows what proportion of the 10 million even perceive that they have much of a ‘problem’ at all, let alone admit to it?
Some enjoy a quality of life much the same as they always had and may gracefully accept a little deafness as part of the ageing process.
When it comes to age, 6.3 of the 10 million are past the age of retirement but hearing loss really takes off in the over 70’s.
Only 135,000 people of working age are severely or profoundly deaf. That’s the same number as the population of Gloucester, merely 0.2% of the UK population.
What difference does it make if in deaf awareness courses, delegates leaving thinking that 10 million people have a problem with hearing loss?
It is probably a good thing that people appreciate how close to home hearing loss could be. That it can affect anyone at any time in their lives.
I do wonder, however, if the implications of giving people such a big number could be far more serious.
Let’s imagine that major government funding is secured on the basis that there are ten million people in need and hundreds of millions of pounds are allocated over many years to tackle the problem.
Could that mean that those precious millions of pounds are frittered away on some people who don’t even feel that they even have a problem, while the 800,000 people who are severely to profoundly deaf might feel that their issues are not being addressed enough – issues like employment, access, inequality, or suitable care in old age.
What a travesty it would be if extra millions were finally spent on deafness and hearing loss, only to be poured into programmes aimed at trying to give hearing aids to millions of people who don’t want them, while the quality of life of a much smaller number of people, slides backward.
So, the question for you, the reader, is this: Is the statistic that ten million people in the UK have a hearing loss useful? Or does it potentially lead attention and funds away from those who really need it?
*Statistics from Action on Hearing Loss
Andy is Chairman of the Peterborough and District Deaf Children’s Society and teaches sign language in primary schools. Contact him on twitter @LC_AndyP
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queby
September 26, 2014
Does anyone know the percentage of wheelchair users in the UK? I ask because theatres provide more access for them than they do for the hearing impaired…i.e. captioned performances. I’d like to have a percentage to quote when I complain about the lack of captioned theatre.
Jules
September 26, 2014
It’s only 4% of disabled people who actually use a wheelchair, so a much smaller number than that for the general population!
Linda Parkin
September 26, 2014
It’s an interesting point. I am one of the ten million, but it doesn’t affect my life much, any more than wearing glasses makes me “visually impaired”.
I remember a nightmare meeting with someone in government who announced they knew all about deafness because their elderly father had age-related hearing loss. No way were they taking in what we were trying to explain about the barriers to education and employment faced by young and working-age deaf people.
pennybsl
September 26, 2014
It is similar to labelling the Black population in the UK, when in reality there are hugely diverse groupings and ‘merging’ within this population.
But deafness is always a hot potato in many people’s minds, especially decision-makers’.
We have not been able to break through the public consciousness as much as we would like it to happen, that amongst the demographically scattered 10 million there are deaf people who sign, who are bilingual, bicultural, speaking only, lipread, use notes, etc.. to communicate.
For instance, no matter how small the signing Deaf population is, they are a significant segment of the UK population, with family, household mates, friends and professionals around them. Problems happening to any d/Deaf person emulate outwards to partners, families, communities and even in the workplace.
We need a radical change of culture in handling those statistics, to use newer approaches in making deafness more aware as a lifelong condition with its potentials and potholes within society, at the same time, making greater impact upon hearing culture to make the effort – mostly free of change, it is attitudinal – to meet us halfway. Bingo.
Andy, not him, me
September 26, 2014
Well done for researching this. Black smudge for not doing it *thoroughly*.
The original statistic came from the Government bureau The Audit Commission. It’s independently run by the Civil Service. The number represents the people in this country who have *any kind of problem with their hearing*. You’ve jumped to the conclusion here that it means deafness but it doesn’t. I means anyone with *anything* that affects their hearing in any way. It’s a ball-park number which the RNID and others have picked up. However it represents all kinds of hearing loss from kids with Glue Ear to Age Related Hearing loss.
This would also include tinnitus, because people with tinnitus while not deaf do have trouble in hearing clearly through the din. It also includes people at the opposite end of the scale with Hyperacusis. This is when people have oversensitive hearing and the hearing loss results because they find it too painful to listen. There’s a high degree of discomfort caused by recruitment. Who knew?
So this stat has in fact been used over and over again by various people but without accurately sourcing or interpreting it. I’ve been as guilty as anyone in the past. We shouldn’t be doing this. If we are going to pass on information to other deaf people then it should be cast iron accurate and actually this number isn’t.
On top of everything else, the latest prediction I have seen is that this number is expected to grow in the next decade or so to 17 million. Whether or not this is accurate is irrelevant but what is important is that the NHS is struggling to cope. Imagine a third more people flocking through its doors!
That’s really what we should be worried about. Their workload is clearly going to go through the roof and I think that as responsible deaf campaigners we should ensure that they are equipped to deal with it. Starting from now!
Otherwise we are going to end up with some bodged makeshift emergency stop-gap second-rate service. Oh wait! We’ve been there before!
Editor
September 26, 2014
Hi Andy and thanks for the comment. I haven’t jumped to the conclusion, that’s what it says (follow the link). Its pretty clearly broken down into hearing loss categories too. Andy Palmer
Andy, not him, me
September 26, 2014
I don’t dispute the breakdown. It seems to correspond with other stats that I have seen. As far as I know the Audit Commission arrived at ten million by sampling the number of people using the medical services for hearing difficulties of any kind, it is years old and I think is almost certainly more now.
AOHL have 14.5 million for the 2030’s but I have seen a paper that predicted 17 million by the mid 20’s, I think that was from the World Health Organisation who are also predicting a surge in services.
One thing I won’t dispute is that all the numbers are pointing to the fact that we need more rather than fewer services in the future. Knowing the length of time it takes to get anything done we should be getting started right away at this election.
Good deaf quiz question : Which former CEO of RNID became the head of the Audit Commission?
Link: http://www.audit-commission.gov.uk/
Andy, not him, me
September 30, 2014
Hope I won’t offend by returning to this but I have just seen an example of what I was talking about. There are NOT ten million deaf and hard of hearing people in this country!
http://www.actiononhearingloss.org.uk/supporting-you/policy-research-and-influencing/research/not-just-lip-service.aspx
Sam
September 26, 2014
An intriguing question. I would say that the figures need explaining to people in such a way that actually makes sense, e.g. ten million deaf people, but nine million are over 70, leaving one million amongst the working, school-age population. So, while the one-in-six might make sense nationally, it also needs to be put that when talking about the under 70s population it’s actually more like one-in-twenty (or whatever the number should be!).
Mike Gulliver
September 26, 2014
The elephant in the room for me isn’t the number, it’s the illusion of the word ‘deaf’: “10m affected by deafness, 800,000 severely or profoundly deaf…” It’s always auditory.
Within that huge number are two clear groups, with two clear demands. One is (largely) medico-social. The other is (largely) linguistic.
The two groups aren’t exclusive, of course… but their priorities are largely discrete. But because they are lumped together, the (smaller) linguistic group end up trying to fight the (bigger) socio-medical group for voice, representation, policy presence, and resources. And the bigger group criticise the smaller group for distraction, single-policy obsession and confusion of the issues.
These are *two* different groups, and not one… and this seems to be a point that even those supposed to represent deaf people across the UK don’t seem to have grasped. As discussions around the recent (ongoing?) UKCOD consultation suggests, even they don’t seem to recognise that the old ‘one category’ approach doesn’t work.
10m might not be a lie, but if you’re only allowed one category, then in a world that allows one policy, and one pot of resources per ‘minority’, the needs of the many will outweigh the needs of the few.
So, for example, we don’t even know how many BSL users there are, because no-one can be bothered to count them… they don’t ‘count’ in policy terms, so the government doesn’t care!
The only way to get a true representation of the picture is to stop using such misrepresentative stats, and to present the picture as it really is, in all its grainy complexity.
Policy should fit reality, and not the other way around.
Andy, not him, me
September 26, 2014
I think you are wrong to see two distinct groups. There is no line between. Rather a very large grey area of people who are fluent in sign but speak in English as well.
There is a linguistic minority who are dependent on sign, they self -declared in the last Census. But I think this number is shrinking because English education in the Deaf world is improving.
I believe that while signing is widely used in the deaf community we are no longer dependent on it as our sole means of communication. Back in the old days, when I was a boy we had sign or nothing. It hasn’t been like that for many years now and so a great many people are in fact bi-lingual.
Just to make life more interesting we have a completely new kind of 21st C Deaf person who signs, speaks and writes English and can hear quite well via a CI.
How can we ever simplify all this into an easy-to-digest form for public consumption?
Tim
September 26, 2014
And nowadays most Deaf people are somewhere on a spectrum between SSE and BSL, so even counting the “BSL” users would be tricky.
For me, the problem is those organisations that are rigidly wedded to the medical model because they want the money rather than because they want to promote the interests of Deaf people.
shonajh
September 26, 2014
Whichever way you look at numbers there will alwaysbe several different viewpoints and interpretations. I think there are a lot of people out there who live with their mild or moderate hearing loss but are in reality having a miserable time. Maybe I am like a magnet attracting similar people but now I am being more open about my hearing issues and talking to people , I would say lately the 1:6 is feeling pretty representative. Different groups need different things and so numbers will be changed to reflect how competitive it is out there to get support and funding & I am OK with that as it depends who you talk to and why. However for those in the mid range of hearing problems I don’t think it takes big bucks to do some simple things to make life a little better such as just having information available explaining hearing loss , some signposts at the GP’s , audiologists etc to self help groups , explaining how to look after HA’s , subtitling/captioning , loops , deaf awareness training for customer facing organisations and just connecting people up who have hearing loss so you can share similar experiences. oh and my biggest bugbear all those office designers/building designers who think layout & visually pleasing designsfirst …more glass , more open spaces ,more air conditioning and forget totally about acoustics and noise …..we are just making it difficult for everyone to hear & building in problems that don’t need to be there !!! Sorry could not resist the last one even though its off topic. Finally as age was mentioned whether you are at work or not whatever your age being able to hear & communicate and being included in conversation is essential to our well being …to finally reach retirement but to find that you miss out because you have a hearing loss and people give up including you in the conversation must be so isolating . I would not want that to happen to me and there are many things outside of the work environment that need improving such as loops , when you are in hospital , shopping etc that would help the whole population who can’t hear so well.
pennybsl
September 26, 2014
Shonajh makes the very valid point that we are still encountering barriers and totally unnecessary obstacles which marginalises us, even CI users with ‘improved hearing’ get tripped over by overt hearing people assuming that CIs solve ‘their communication difficulties with deaf people’. RUBBISH.
We Deafies helped in several inventions like the telephone, visual displays, captions, access by communication, but unlike other areas of ‘sensory/physical loss’ the attitudes and unacceptable compliance about deafness need RADICAL change.
A good shake-up is needed.
Cathy Alexandeŕ
September 26, 2014
Pennybsl, we deafies did not help with the invention of the telephone at all! The telephone was invented by Alexander Graham Bell, who was trying to invent something to help his wife hear him better! She was deaf, not him.
It is of the greatest irony in history that Alexander invented something that would change the face of the earth in the most radical way imaginable, but failed to help his wife hear him better and subsequently alienated deaf people!!
It was of course, many more years before deaf people could be involved in the ‘telephone!’
Cathy Alexandeŕ
September 26, 2014
I like the interesting statistic “1 in 6” but it doesnt really tell you very much, does it?
I have always thought that statistics belie the real truth. Does it mean “1 in 6” old people have gone deaf through age? Does it mean “1 in 6” people are profoundly deaf and rely on BSL? Or “1 in 6” people are hard of hearing? You can see the confusion can’t u?
It is really bad relying on such confusing statistics. When I think of the area I live in, these statistics are a total nonsense! On my street alone Iam the only profoundly deaf person who is bilingual in speech and sign language, and can hear nothing without hearing aids.
My street includes flats and houses, so a conservative estimate of those living on my street would be around 45-50 people and Iam the only one who is profoundly deaf and reliant on BSL for meetings etc.
Out of the whole estate, which would add up to a few thousand people there is only 6 of us who are profoundly deaf BSL users!! Of course this does not include those with age related deafness, as their communication needs would be very different to the 6 profoundly deaf people reliant on BSL!
I do not believe such statistics help minority groups, such as the deaf community. And the statistic of “1 in 6” certainly does not apply on my estate, even if age related deafness was factored in!
I feel the deaf community is let down by such statistics, and I certainly see no benefit from it for the teeny weeny number of profoundly deaf people who live on this estate. Around here the statistic is more likely to be: “1 in 500!”
It would be much more helpful I feel if the statistics did not lump us all together: profoundly deaf BSL users are Iam sure the smallest minority in Britain, the other probably equally as small are the deafblind, then hard of hearing and age related deafness.
I do not believe banding us all together into a simple statistic, such as “1 in 6” is helpful and the statistics should separate the groups, so that people have a real picture of the numbers of profoundly deaf, hard of hearing, deafblind and CI users. This would serve us all so much better, surely?
Pardon
September 26, 2014
I don’t think it’s about numbers… it’s about awareness. Even people with one-sided hearing loss have issues with communication, especially if the background noise is high,
It is so important to clarify that hearing loss is here to stay, from birth to aged 100 + – whatever the cause, the effect is going to be the same, the barriers like-wise. The world is a lot noisier that it used to be, people are already damaging their hearing by listening to music at ever louder volumes that would not be tolerated in a workplace H&S environment.
So for me – the 10 million is a shock tactic, it will grow whether the population ages or not, and we, as experts in our field have a responsibility to society to:
1) highlight the ways we deal with the barriers deafness brings in all it’s guises, linguistic and auditory and visually…. and
2) to educate others to look after their hearing.
I continue to say this – not from a personal perspective, after all nothing can save me from total deafness, even a CI doesn’t really work for me, I’ve been totally deaf too long now, born at the wrong time to take advantage of real medical improvements.
However – there are 3 levels of how we deal, the primitive, in which we lose our sense of belonging to the world by noises that make us feel alive (wind, water, background hums)… to danger – alerting sounds like a baby screaming, a door being knocked, a fire alarm… to communication. where we actually use sound and or power of speech to be able to say what we want,, how we feel and to take orders and gain the same emotional feelings from others…
Deafness, be it mild, moderate, severe, profound of total – is a real disability in this world we live in.
Suzie Jones
Cathy Alexandeŕ
September 26, 2014
Suzie, I’d just like to say you have highlighted one of the reasons why I have not gone for the CI: “been deaf too long”.
Still, I agree statistics don’t educate the masses about deafness, and therefore dont serve much of a useful purpose, especially when they are quite misleading, as in the example of “living on the estate” I gave.
It is going to be the case however, that as the generations grow up the numbers of those with seriously damaged hearing is going to increase, due to listening to loud music and nightclub excursions, like u say, Suzie.
I feel the time to educate about deafness is well overdue and it is time to steer away from statistics and start a campaign around the country to explain how loud noises damage the delicate structure of the ear and is highly likely to leave one with debilitating tinnitus, as I have. Believe you me it is no joke to suffer from tinnitus. If I could bottle it and sell it as a precaution i’d be a millionaire!!! Neither is it unknown for people to take their life because of it!
Mild and moderate hearing loss would not impact the same as for those with severe and profound loss of hearing, they dont rely on another language stream such as BSL. All those hoh people I know cope just like hearing people do with a hearing aid and some are interpreters!
Regardless of the comparable differences between us all, it is imperative to educate the young about deafness and the debilitating ringing in the ears after a jaunt in a nightclub, then we are far more likely to have an impact on deafness than any number of statistics will ever do!
Tabitha
November 4, 2014
Of course there are a wide variety of things that can go wrong with hearing, and we can categorise ourselves into these separate groups all we like, but the point of grouping everyone who has any kind of hearing problem is useful, imo, to get the rest of the country aware that there are enough of us who are struggling to communicate to some degree or another.
I agree it’s not about the numbers. If there were only one Deaf person in the whole of the UK, then you can bet that people would take her under their wing and find ways to include her and communicate with her. As it is, hearing people make assumptions that the technology in use today gives us normal hearing and they expect us to keep up even when they are talking to us from another room. They also assume that if you have hearing loss then you must also be part of the signing community. These beliefs dictate the attitude of the hearing, who have great difficulty in adjusting to believing us when we tell them how it really is.
It’s interesting to read about the concerns over the costs of providing expensive technology to the growing number of people who will need it.
I wrote an article for LC just over a week ago, with what I believe would be a more reliable and comparatively cheap solution to waiting for technology to finally help every kind of hearing problem, which is to teach BSL in primary schools with the aim of having it as our second language.
I wonder that this hasn’t already started to happen. But as someone else mentions here, perhaps technology has more importance because of the potential income it would generate. The first CI was provided in 1976 – 38 years later technology still doesn’t cut it for most of us. Teach BSL over the course of 38 years, and what have we got? – a lot more people knowing sign language and who are D/deaf aware, and a more inclusive society where the D/deaf have equal opportunities right across the board.
I know which I would choose.