The shocking state of England’s children’s audiology services is revealed in a report published today.
1000 parents were consulted for Listen Up!, a report by the National Deaf Children’s Society, that highlights a number of failings, ranging from children being fitted with hearing aids that do not work, to audiologists misdiagnosing deaf children.
79% of parents reported waiting more than the Government’s recommended waiting time for appointments for replacement earmoulds – a vital part of the hearing aid which fits tightly into the ear and needs replacing frequently as a child’s ears grow. Almost all (96%) of parents reported waiting too long for the earmoulds to be ready.
In addition, parents reported waiting more than the recommend time5 for their child’s first audiology appointment with almost half (44%) reporting they waited five weeks or longer. A further 20% waited over eight weeks.
The report coincides with the Party Conferences to target MPs, as the Government has recently stopped assessing the quality of children’s audiology services.
Jo Campion, Deputy Director of Policy and Campaigns at the National Deaf Children’s Society, said:
“The state of children’s audiology services in England is extremely concerning. Evidence clearly shows these vital services are not up to standard, yet the Government has recently stopped assessing services against quality standards, leaving little incentive or support for services to improve. This can only make matters worse for the 35,000 deaf children in England. We’re calling on the Government to ensure quality standards continue to be assessed.”
The National Deaf Children’s Society’s research was prompted by an earlier report by the NHS7 that revealed one third of audiology services are failing to meet basic standards.
Jo Campion continued:
“Hearing is critical to a child’s development. As a deaf child grows they will need regular audiology appointments to ensure hearing aids fit well. Waiting a few days or weeks might not seem long, but if you add this up, a child misses out on a lot of crucial listening time in the vital early years. Every day a child is waiting is another day they lose out on hearing their parents, developing their language skills, learning from teachers, or joining in with conversations with friends. Currently thousands of deaf children are being put at a disadvantage by the very people who should be helping them.”
Sam Sykes is mother to 15 month old Tate who was diagnosed deaf when he was born. She said:
“At three months old Tate was fitted with hearing aids, but the frequency was set too low so they didn’t work. I knew something was wrong but it was four months before the audiologist saw Tate again. I felt helpless. This had a huge effect on Tate’s development. He didn’t make any real noise until he was eight months old or say his first word until ten months. He’ll never get those crucial months back. It’s so important that the Government listens and improves audiology services.”
Further serious problems reported in Listen Up!, include:
· Audiologists failing to use the most up to date tests and misdiagnosing deaf children – one parent reported it taking 12 months for their son to get a correct diagnosis, in this time his teachers thought he was misbehaving.
· Audiologists failing to ensure hearing aids are set-up correctly – one parent said their child’s hearing aids were set up wrong three times in a row.
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Nicola
September 29, 2014
My daughter was only diagnosed at the age of 2.5!! Even though she failed hearing tests from birthday to 11months! Apparently at 11 months old she passed and they were happy to discharge her! It was only through me pestering my go to be refered again that we got anywhere! Because I wasn’t taken seriously my daughter missed out on 2.5 years if hearing and developing! I couldn’t feel more let down! All I can be grateful for is that my daughter can now start developing and we are finally making progress!
National Deaf Children's Society
September 29, 2014
Hi Nicola, We are sorry to hear about the quality of service your family has received.
If you would like any support from NDCS with an issue please contact our Freephone Helpline on 0808 800 8880, or there are several other ways to contact them listed here http://ow.ly/C3EGK.
You can also take action by emailing your MP: http://bit.ly/1nxPdMJ
You’re welcome to ask any questions or continue the discussion further on our Facebook page https://www.facebook.com/NDCS.UK
Brian Gale
September 29, 2014
Thanks for the publicity and support. Just 2 points of clarification. By misdiagnosis we mean inadequate testing and interpretation of results meaning some children receive incorrect results. By hearing aids not working we mean hearing aids for some children are incorrectly set up rather than them being faulty products.
Brian Gale, Director of Policy and Campaigns, NDCS
pennybsl
September 29, 2014
Thanks, NDCS and fellow Deaf Education professionals for flagging up the issues.
There are cost-effective solutions to safeguard deaf children’s audiology equipment and support:
– train and employ deaf audiologists (most equipment are visual-led now) – they benefit any audiology team and department. If an audiology dept doe not want this, there is something very wrong.
– train and sign on (volunteers) or employ part time ‘audiology advocates’, ie young people and adults who use hearing aids / CIs, to ensure each deaf child’s usage of his/her hearing aid/CI is maintained with time-effective actions on discomfort, fitting, loss and damage.
– ‘parent champions’ who understand the processes and be on hand to give time & support to carers / parents of deaf children in audiology issues.
In one school, staff have to stand aside with anxieties, concerned for a recently diagnosed teenager waiting at least half a year for his hearing aids. There is unacceptable complacency and ignorance of the impact of missed information/learning for the person concerned, NO MATTER how mild the hearing loss is, how old the child is, it means a longer period of costly rehabilitation.
The Government’s stance on audiology services (even speech & language therapy services) is bonkers considering the evidence of higher numbers of people with hearing loss in the next several decades. If only several more MPs experience hearing loss and the deadly silence during PM’s Questions, for instance…such cutbacks would never be considered at all.
Oh Dear
September 29, 2014
Failing deaf adults too………