Once upon a time, many moons ago, a relatively young and still relatively pleasant version of me stood in the queue for dinner at school.
Even as a small (and relatively pleasant) person, I had a well-developed sense of when people were looking at me.
Hearing aids gave me access to some sound but nothing particularly useful, so I soon learnt to notice things. Like people lurking behind me.
Perhaps it comes from being deaf, or perhaps it comes from spending your formative years with a truly terrible fringe. We may never know.
As I stood there, trying to decipher whether the picture on the menu was sausages or broccoli, I just knew someone was looking at me. I turned round very, very slowly, because even as a child I had a taste for the dramatic, and saw the one and only Katie.
There were several Katies in my year at school, but this one was Katie.
In a similar vein to Madonna, Ronaldo and, er, Hitler, Katie needed only one name. Everybody knew who you were talking about if you simply said, “Katie”. They knew, and they fled.
She put her head on one side, and I remember thinking, ‘Oh, people actually do that?’ swiftly followed by, ‘I really hope it’s broccoli, because she’s going to kill me and I’d hate to miss sausages.’
But Katie didn’t kill me. She just said, “Can’t you read? Is it because you can’t hear?”
Now, I’d love to say I came back with a pithy retort (perhaps, “Do you read with your ears?”), but in reality I probably just stood there trying not to say anything, lest it result in my being killed.
Katie was not the kind of child who needed an answer anyway. She merely continued; “It must be terrifying to be deaf. I don’t know how I’d cope if I couldn’t hear at all. What will you do if your ears stop working completely and you can’t hear anything? I feel sorry for you. I really do. You’re just always going to be deaf. You’re going to miss so much!”
And that was when I realised two things.
Firstly; it’s a big deal to other people. They are literally scared of being like me. And it’s not the fringe after all; it’s the deafness. They don’t think they would cope with the loss of that all-important auditory input.
Second, wow. They don’t hate me. They don’t fear me. They just don’t know if they could cope being me. And it’s not the fringe!
But, damn! What if these things in my ears stop working and I can’t hear anything? Eek. Seriously; eek!
And that ‘eek’ stayed with me for a long time; the fear that I would lose this tiny amount of residual hearing that had, amongst other things, got me into this brilliant mainstream school with its arty menus and its Katie.
I genuinely spent a lot of time worrying about it.
And then when it actually happened, when I suddenly became fully, completely, terrifyingly deaf, none of the worrying made any difference to how it actually felt. Or how I coped with it. (Badly.)
And, you know, it’s so funny to think back to those times. It’s so funny, because Katie, aged eight years and three months, unwittingly tapped into a fear that I think, one way or another, I will carry with me forever.
Except now it’s polarised; imagine if your ears start working again?
Imagine never being able to just switch off from the noise of the world.
Imagine never having freedom from sound.
Maybe it’s just because I’ve experienced it for so long that it’s a safe haven for me to revisit, but I truly love it.
Letting go of trying to listen, and carrying on with one less thing to worry about; sound.
Knowing there is no way that I could hear anything right now, and not even trying to engage with noise, or speech, or a passing Katie.
Ah, Katie. I wonder where you are now? I hope you’re very successful and very happy.
But even if you are, I’m afraid I feel sorry for you. I really do. You’re just always going to be hearing. You’re going to miss so much.
And I don’t mean the sausages.
By Emily Howlett. Emily is a Contributing Editor to this site. She is a profoundly Deaf actress, writer and teacher. Emily is co-director of PAD Productions and makes an awful lot of tea. And mess. She now has not one, but four grey eyebrow hairs. C’est la vie. She tweets as @ehowlett
The Limping Chicken is the world’s most popular deaf blog, covering UK news and opinions every weekday.
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talhuladiamond
November 11, 2014
Oh, such a brilliant and witty piece of work. I love this, and very much look forward to reading more of your stuff…
mike fahey
November 11, 2014
Love it… actually holds meaning for me because my CI is being switched on this coming Friday and l am thinking how will l cope….with the noise! beautiful piece of writing…
Natalya
November 11, 2014
People are confused when I say I wouldn’t want to be hearing. I’d quite like not to lose what I have with hearing aids, but I’ve sort of got a plan for that (keep getting better at sign language!) but I would hate not to be able to turn the noise off which I do an increasing amount of the time.
I remember when I discovered people were scared of me aged 5, they thought they could catch deafness and physical impairments. I think for hearies going even a bit deaf is a lot more devastating for them than a deafish person going more deaf.
Cathy
November 11, 2014
What a clever n witty piece of writing!! It rings bells for me in many ways and I can understand the worry of not being able to switch off sound ever again!
But the difference with me is having dreadful chronic tinnitus and that alone means wanting to hear much better at least. Anyone with shrill pitch or roaring tinnitus never knows true silence anyway as the noises are constant.
I dont think hearies can fully understand deafness just as deafies cannot always fully understand being hearing, especially for those born deaf.
Iam not sure exactly what hearies are missing apart from total silence, but deafies miss out a lot socially: communication in social gatherings, music n laughter. I dont agree that vibrations from music is quite the same thing either. Voices are also unique and some men have deep sexy voices!!!
So as witty as this article is I dont think THAT Katie is missing anything at all that matches what a deaf person is missing. But as the saying goes: “You never miss what you’ve never had!”
talhuladiamond
November 11, 2014
I agree Cathy. I too have tinnitus, and noise intolerance. On days when my intolerance is too bad to leave the house I wish I was completely deaf. But then on days when the pain isn’t too bad and I’m having fun, I wish I could listen to music, (straining to hear causes more pain)… It’s a real pickle at times.
I’ve just met a man though who has a very deep, sexy voice, and when he speaks I can feel the vibrations all the way through my body! I’ve never known anything more phenomenal in my life… So, for that reason, I’m glad to be losing my hearing…
Cathy
November 11, 2014
Oooohh!! Talhuladiamond, you have found a man with a deep sexy voice, yet your glad you are losing your hearing!? Eh? Come again! Would you not rather have the sound of his voice aswell as the vibrations?! You have double then!
This is one reason why I dont go out with deaf men as speech is not always coherent and the deep sexy drawl is missing! I think i’ll find the voice I want very soon though!!!
Iam already completely deaf so my tinnitus is still there without my aids, it is worse with aids in so I can hardly win. Am keeping my eye on stem cells though, they can grow the hairs back in the cochlear, the problem Scientist have is switching it off as they grow n grow n grow!!! But keep an eye out as we’re nearly there!!
Happy Days with your new man’s sexy vibrational voice!!!
talhuladiamond
November 12, 2014
But I don’t think that if I wasn’t losing my hearing I’d be so aware of vibrations. When one of your senses goes your others improve. I would ideally like to be able to hear the voice as well as feel the vibration – but I don’t think that would ever be possible. If I was fully hearing my other senses wouldn’t be as strong and I’d therefore not be as spellbounded by the magic of vibrations…
Happy days to you too Cathy. I have a good ‘feeling’ about you, and I’m sure it sure it won’t be long until your day comes too! 😉 xx
Carrie
November 11, 2014
I got tinnitus 6 months ago (might never know why). The ENT said my hearing was fine, but I was utterly inconsolable about this quiet ringing in one ear. So it’s pretty enlightening to read articles like Emily’s about how irregular hearing — or no hearing at all — is not the end of the world by any means. I’m obviously not directly comparing tinnitus and deafness, but it is great to read people who know that your hearing is not actually the be-all and end-all.
Bradley Porche
November 12, 2014
Great article! I have always enjoyed reading your article and you put things in perspective. Keep it up!
Deafnotdaft
November 13, 2014
Good article, Emily! I do a lot of deaf awareness talks to all sorts of audiences and I like to kick off by asking them to think of three sounds they’d miss if they became deaf. Among all the usual answers like “birdsong”, “Robbie Williams”, etc, one person said “silence”. Their point was that the world is horribly noisy these days, with traffic, mobile phones, pop music and the like. Silence is to be really valued as an escape from all this hubbub. But if you became deaf, then you’d no longer value it because it would be the norm. And in that (slightly perverse) respect you’d miss it. So silence really is golden. If ever I get that answer again, I’ll quote your article.
quietlyloudphoto
February 9, 2016
Oh my goodness what an excellent article. I feel the same way as you about fearing I’ll never have the ability to shut off my hearing. As much as I hate to not wear my hearing aids in public, sometimes I turn them off because I just don’t care for the sounds around me.