Do you hear that? I often ask my family that question.
Sometimes I can’t tell if the noise I am hearing is my tinnitus or if the sound is actually there. Usually, it is all in my head. Typically, I know this, to be honest, but I ask anyway, just in case.
I have a 40-50% hearing loss in both of my ears, but only mild tinnitus. I am grateful for that.
Sometimes I feel that the tinnitus is worse than the hearing loss! Unexplained sounds buzzing and whistling in your head can make you question your sanity. And give you the worst headache known to man. The lack of sound seems almost a relief in retrospect.
Thus far, I have experienced two types of tinnitus. The first has been occurring on and off for several years and is not that troublesome.
I am not sure what the trigger is, or even if there is a trigger, but all of a sudden, I will hear a sound like a fluorescent light was just turned on, followed by a high-pitched beeeeeeeep that lasts for 30-60 seconds.
It will often start softly, build to a crescendo, and then taper off, like someone has turned the fluorescent light back off. It happens in noise and in silence. It comes and it goes, maybe once or twice a week. Strange, but not bad.
But recently, a new type of tinnitus has started, and this one is more debilitating. Again, I’m not sure if there is a specific trigger, but it seems to happen more often after I am exposed to rhythmic loud noises (like a bathroom fan) or to bright lights.
It starts suddenly, is much louder than my friend the fluorescent light, and can continue for an hour or more. It is exhausting. I cannot think. I can’t hear what people are saying to me over the ringing. I want to lie down, but sometimes that is not possible. I work to focus on the real sounds around me and carry on.
The best way to counteract my tinnitus that I have found is to watch TV or to play music softly in the background.
Any sort of white background noise will do. It needs to be just loud enough to cover up the ringing, but quiet enough so it does not drown out the real sounds around me.
Distracting myself can also help – things like reading an engrossing book, or working on this blog.
Tricking myself into thinking about something else can make the sound drift into the background and become less consuming. Sometimes the ringing will even go away without my noticing specifically that it ends.
Does my worsening tinnitus mean my hearing is getting worse? My recent audiogram says otherwise, but I still worry.
Will my tinnitus take another turn for the worse? I hope not. These are worries that I have, but I cannot spend time on them. I can only focus on living each day the best that I can.
Readers, what strategies do you have for living with tinnitus?
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W Tebbatt
July 30, 2015
I have existed with tinnitus for the last 10 years following a chronic ear infection. I use exist deliberately as sometimes living seems too mild. My hearing is near normal but the constant loud noise is distracting when compared to outside sounds and I find listening to people talking difficult, especially when there is background noise.
I feel ashamed as I’m not deaf and many people I know are, I’m lucky my hearing is ok but, like Shari, the headaches and tiredness from the constant ringing have to be experienced to be really understood.
Sometimes I’m thought rude as I’ll talk whilst wearing earbuds, the gentle sea sounds I play reduce the whistling to a point where I can actually concentrate better on a conversation. At home I wander around freely with headphones on but prefer to flood the house with unsuitably loud music given the chance. Telling the neighbours that you’re playing loud music to drown out the sounds in your head produces strange looks and avoidance when passing on the street 🙂
There is apparently no cure though strategies to ignore it can be learned. Head manipulation can reduce it for a while and is worth asking about. It is quick and non-invasive and can be done at the nearest ENT clinic. Otherwise living with it cheerfully is the only option but friends will still find be banging my head gently on the wall occasionally.
Shari Eberts
July 31, 2015
Thank you for taking the time to share your story.
Elaine
July 30, 2015
I have constant tinnitus, high stress levels certainly make it worse. The best advice I’ve had is to “chill out and listen to something else” not always easy but distraction away from it seems to help me ignore it for a bit. But that can be like trying to ignore an itch!
Shari Eberts
July 31, 2015
Stress is definitely a factor. Thanks for your comment.
Samantha
July 30, 2015
Hello Shari
My least favourite place to go that causes my tinnitus to turn itself into a full blown orchestra is a coffee shop when busy. High ceilings, wooden floors and coffee prep is quite overwhelming. Some places worse than others
It’s a shame because I love meeting up with friends out for coffee.
If possible I sit outside, in carpeted venues or on my own in any coffee shop in the morning before work (no conversation to struggle with) it’s blissfull silence all around so I’m not focusing on my tinnitus.
I have a range of tunes with my tinnitus, sometimes they all join together, other times just milling about.
My tinnitus is constant, no breaks, no respite. I really don’t notice it until I talk about it or something has triggered to make itself ‘heard’. Anything from a blaring t.v, lots of conversation all around me, restaurants. We can’t avoid them all.
I really don’t think about it most of the time. It really is about trying to relax and go with it.
Mine is screaming right now because I’m talking to you about it……crazy!
It’s a cruel trick that when my hearing finally goes (through surgery, I have NF2) tinnitus makes itself comfortable and stays…….darn it!
Shari Eberts
July 31, 2015
Coffee shops are killer. I have started looking for restaurants with carpet and acoustic tiles! Hard to find. Thanks for sharing your experience.