You might have seen the documentary, Found, a few months ago. I am one of the three contributors with Joanne and Emily.
To watch John sign his article in BSL, click play below:
I learned something from this experience; I realised that many people are at different points in their journey to explore their Deaf identity. Is there something I can explain here to enable people to think about their own process?
I thought, perhaps, I could describe my own processes, which might mirror other people’s experiences. To be honest, everyone’s journey will be different.
There may be different lessons or different stories, but the same milestones. What is important is that we spend time learning about what is happening around us.
Age 19
I asked for an appointment with audiology, a big place in London, eventually I was invited into the consultation room with a guy who had a fancy moustache and sleeve clasps. I was not even asked why I was there. He immediately went for my hearing aids, examined them, checked them, and then looked at me quite puzzled.
“Your aids are fine!”
“That is not why I am here,” I replied. “I wanted to see if there was anything better for me.”
He sat back and looked at me as if it was a ridiculous question. “You have the most powerful hearing aid available,” he retorted. “What more do you want?”
That last question took me for a spin. I wanted to be included in society, I wanted a good career, I wanted a partner … I rolled out the list in my mind. None of that list can be answered by this guy.
I knew I was wasting his time and mine.
After-thoughts
I read something about the ‘power of the clinic’ (from a French philosopher called Foucault). How we look up to them and seek their guidance in all that is wrong with our lives.
We want our ills cured, but in return for asking, we also have to buy into their industry. They have taken my time, my family time, shaped my studies, as I incorporated the ‘whistling’ and ‘drooping hearing aids’ into my identity.
With my auxiliary aids, I am shaped by their industry: their technical twiddling of their sounds in the aids became the sounds I heard.
My response to ‘what more do you want?’ was simple, ‘everything’. This man knew it was an impossible question because it was impossible to answer.
I realised the question was loaded with expectations of what he thought I should be asking of him. The power of the clinic is not just about their authority, but also who I am to them. The patient. A subject.
He put his hands in my ears, without my permission, and chose to remove my hearing aids … without asking why I was there in the first place.
This was the start of my journey to decide whether I wanted to support this gentleman’s industry.
Age 19 #2
In those days, I spent most of my time at Friends for Young Deaf people (FYD) and their fantastic training programme. I loved every minute of it. (There is a book out about this organisation’s excellent work)
In the leadership training weekend, we were given a task. We were asked to build a bridge out of lego between two tables, one metre apart. There was a group of us and one person was appointed as a leader. The team was intentionally mixed with different communication preferences for this nearly impossible task – but we HAD to make it work.
I assumed the sign language user would know nothing, they were deaf after all. And the hearing person in the team would be the most knowledgeable person, because they could hear.
I thought, like a pecking order of hearing aid users, that hearing people would be at the top of the knowledge tree and signers at the bottom. Wasn’t that how the world worked?
So I asked, “what do you know about bridge building?” There was a blank look from the hearing team member. “Anything?”
“I have never played with lego before.”
I looked at my team mates and scratched my head, puzzled. This person might be able to hear, but …
At that moment, the sign language user shared her love of engineering, bridge design and understanding one’s materials; she had books on it. Until now, I was looking in the wrong direction.
“This tasks is impossible,’ she said. And she was right. “But lets give this a damn good try.” I appointed her as the team expert and supported her ideas by motivating the team and making sure everyone understood her instructions.
After-thoughts
The ‘power of the clinic’ is here too. It is assumed that the hierarchy of needs and the hierarchy of abilities are the same. ‘The route to a cure is also the route to powerfulness.’
It is what brings about the idea of being ‘normal’ and normalisation, because it is assumed that a hearing person would have a better life than a deaf person, and even more than a sign language person.
But it is not about that at all, it is about what we do with our skills.
One should not underestimate that someone, whose language is not prevalent in daily life, actually works the hardest to communicate their ideas, build their knowledge and perfect their skills. Those skills are not always afforded to hearing people who have communication provided on a metaphorical plate.
I learned that I will never automatically look to a hearing person as a source of knowledge, just because they can hear. Just because that is what the ‘hearing industry’ expect me to do.
John Walker is a Teaching Fellow at University of Sussex and PhD student in Social Geography. Deaf, and sign language user by informed choice. He writes a blog on topics related to the Bourdieusian principle, by the title “Deaf Capital” . It is concerned with the ‘value’ that people place on the Deaf community or the cultural elements of deaf lives that can be askew or misconstrued. Follow him on twitter as @chereme
The Limping Chicken is the UK’s deaf blogs and news website, and is the world’s most popular deaf blog.
Find out how to write for us by clicking here, or sign a blog for us by clicking here!
Make sure you never miss a post by finding out how to follow us, and don’t forget to check out what our supporters provide:
- Phonak: innovative technology and products in hearing acoustics
- Ai-Live: Live captions and transcripts
- Bellman: hearing loss solutions
- Deaf Umbrella: sign language interpreting and communications support
- Clarion: BSL/English interpreting and employment services
- Appa: Communication services for Deaf, Deafblind and hard of hearing people
- SignVideo: Instant BSL video interpreting online
- 121 Captions: captioning and speech-to-text services
- Doncaster School for the Deaf: education for Deaf children
- Signworld: online BSL learning and teaching materials
- Sign Solutions:, language and learning
- Sign Lingual: BSL interpreting and communication services
- Action Deafness Communications: sign language and Red Dot online video interpreting
- SDHH: Project Development and Consultancy
- Mykasoft: Deaf-run Web Design Studio
- BSLcourses.co.uk: Provider of online BSL courses
- deafPLUS: Money advice line in BSL
- Hamilton Lodge School in Brighton: education for Deaf children
- Lipspeaker UK: specialist lipspeaking support
- RAD: financial advice for Deaf people
- Krazy Kat: visual theatre with BSL
- Exeter Deaf Academy: education for Deaf children
- SignHealth: healthcare charity for Deaf people
- CJ Interpreting: communication support in BSL
Lee Robertson
November 18, 2015
Brilliant and clear speech, can’t wait for next lesson, thank to share with us with your thoughts.
Rosie Malezer
November 18, 2015
Possibly one of the most powerful and realistic articles that I have ever read. So many people consider Deaf as stupid and broken. Audiologists in Finland are surdophobic audists. Their attitude is that if you cannot hear, refuse unnecessary surgery for a CI and are at peace with your Deafness, you are truly a waste of space. This leads me to the conclusion that they should go out and get a real job. I am Deaf and proud. No CI. No hearing aids. I communicate with ASL and my favourite t-shirt says “Deaf does not mean stupid, just as hearing does not mean smart.” Intelligence is about your brain, not your ears.
John David Walker
November 18, 2015
I still think it is possible to be Deaf and a CI user. It doesn’t mean that you are wrong and they are right, it is about people making their own choices. At the age of 19, I became aware that other people were making choices FOR ME – and I wanted some of that power back; as you have done.
Tim
November 18, 2015
Pretty good article, but the ‘journey to explore [our] Deaf identity’ is not the same thing as a ‘journey to becoming Deaf.’
Deaf people are Deaf from day one; we don’t have to jump through hearing people’s hoops and we don’t have to jump through other Deaf people’s hoops before we can self-determine as Deaf and proud.
John David Walker
November 18, 2015
Interesting view point. I think the problem is that in the process of growing up in a mainstream school and hearing family is that we are expected to jump through the ‘hearing hoops’, to quote your analogy, as a process of normalisation. The question is how does one come away from these ideas and become the ‘something else’ that is not what the ‘hearing industry’ expect. For me, I call that something else, ‘Deaf’ (in the form of a social and cultural identity).
Tim
November 18, 2015
What I mean is that Deaf people have their Deaf identity suppressed by this oppressive ‘normalisation’ that you describe, but they are still Deaf from the beginning.
I think I am a little sensitive to when Deaf people make out that other Deaf people are ‘not really Deaf’ because they haven’t done A, B or C – that’s what I mean about not having to ‘jump through other Deaf people’s hoops.’ II think that’s rare now, but I feel that that too is oppressive.
This is why I think that ‘discovering your Deaf identity’ is a good description, but I am less sure about ‘journey to becoming Deaf.’
nabbiex
November 18, 2015
If one man with one arm requests for artificial arm, then doctor may help. If the two-arm person requests for third artificial arm, then doctor may say No. Why? Because doctor’s interest is the equality and maintaining the majority (normalization).
John David Walker
November 18, 2015
Yes, and why does Cochlear Implants only pick up sounds that are within the hearing threshold? Why not other frequencies beyond the hearing range? Gamma radiation? Radio frequencies? Normalisation is about making us ‘like them’, so we can be available to them (and not quite them).
nabbiex
November 19, 2015
Re: Age 19#2. I notice “Impossible task” versus “we had to make it work” or “lets give this a damn good try” is a crucial test for both sides. My father is “born dual identity” & myself as born-deaf. We were used to argue lots – his real habit is by saying “Impossible” & I often challenged him by saying “why not?”.
In my definition of “born dual identity”, it means he was born as hearing or at least 85% hearing. He was brought up by deaf family, deaf school, marrying deaf wife twice with deaf children. His hearing ability was to hear both the various accents and deaf voice characteristics.
Today I still don’t know whether I should accept his dual perspective view or not but at least your article is making sense after all.
Natalya D
November 19, 2015
Finding ones place in a deaf identity is such an interesting and complex area. Loving this article.
I may wish Big and little D stopped being used on real people (useful as a concept, less useful and more damaging used as a label for individual people [Self identity is personal choice]) but the idea of a deaf spectrum identity which is about respect for all deaf people whatever choices and preferences and languages they use is very attractive to me.
I am lucky that while I was bought up in an oralist city with many oralist professionals in my life my parents were always open minded and have been nothing but supportive of what BSL/SSE I have learned as an adult – if SL had been easier to access I would have accessed it earlier. My mum defended my choices very vigorously when an oralist-audiologist criticised me for passing my BSL L 2 exam and nixed all the oralist lies about SL damaging speech and hearing abilities.
For me, in deaf spaces I *am* normal, I see aspects of myself reflected in others in a positive or just “is” kind of way.
i could probably write loads but I have to write 6k words for an MA assignment on internalised oppression and psychoemotional disablism…. All rather apt in deafness identity stuff and oralism etc.
deaflinguist
November 19, 2015
Hello John, I learnt this lesson in a different context at about the same age. I went to uni and by and large they were really supportive (academic staff, pastoral staff, the specialist disability advisors, hearing friends and deaf peers) with people who asked me how I would like to be helped and let me choose. Fabulous. It was a hugely positive experience, particularly after school (but let’s not go down that route or I’ll be writing a very long post).
However, in my first term I ran up against one seminar leader who was very reluctant to make adjustments for me before I’d tried one seminar “their way”. I was asking not to be excused seminars or their topics, but to have them replaced with 1-1 sessions where I had a better chance of contributing to a discussion. In other words, a reasonable adjustment avant la lettre.
I explained until I was blue in the face that I’d be sitting on the sidelines not understanding anything and it would be a waste of both my time and theirs. It cut no ice: they weren’t budging till they could see for themselves I wasn’t managing. I think they saw a young woman exaggerating her difficulties and not wanting to pull her weight, not someone who was expert in her own needs and articulating them to maximise the value of her education.
I toddled along to a very frustrating seminar where it all happened as I foretold. I had every satisfaction in telling the professor “I told you so”, and I vowed never, ever, to let it happen again.
That was the day I became an adult.
Brandi Havard
April 17, 2016
Hello,
My daughter was born with cCMV. By 11 months she was diagnosed profoundly deaf. Her father and I made the choice to have her implanted. She is a success story with CI. She is mainstreamed average to above average student, she is 10 now. However. I feel that we have placed a HUGE financial burden upon her future along with blurring her identity. We live in Texas, where I teach at a small school. She started her educational career at a deaf ed day school and transfered to our local school for Kindergarten. When she transfered, she was oral enough that they did not see the need for a signer, and in fact she didn’t have to have one as a “hearing” kid, but…SHE’S DEAF! My ignorance of the situation let it roll along with only saying she REALLY needs to keep signing. She is now a 4th grade student that is almost completely dependent on her battery powered communication. I know that is not an acceptable choice for a deaf person. I am trying to get Texas to change it’s legislation for deaf/hh students. My DEAF daughter needs to be able to survive WITHOUT batteries. The phrase, “She does so well she doesn’t need _____,” needs to be completely removed from her IEP/ARD meetings. She is deaf and should be taught as such. She needs life skills! Any guidance, research that you can send me would be greatly appreciated!
Thanks from a hearing mom with a deaf kid.
Brandi