Matt Keer, member of NDCS, guest blogs for the NDCS blog (originally published here) on the Ofsted/CQC consultation on SEND inspections.
Dear Ofsted & CQC,
I’ve got two profoundly deaf boys. I’ve sent a response to your consultation about how to inspect special educational needs and disability provision in local areas. But there was something else that I wanted to say from the heart.
As a family, deafness has been part of our lives for over 15 years now. We got through the initial storm: dealing with diagnosis, learning how to help the kids develop, protecting them when they experienced social stigma, giving them a sense of self-worth and pride in who they are.
We managed all that. We’re not special people. Tens of thousands of other parents in our shoes do the same thing every day.
But the process of getting our kids the educational support they need? The support that they have a right to by law? Getting that nearly destroyed us.
Both our boys are now at a special school for the deaf – Mary Hare School in Berkshire. It’s a school that, educationally and socially, is transforming their lives – the ‘best possible outcomes’ that the new SEND legislation aspires to. It is a truly awesome place. But it took us years to get them there.
How did that come about? Pretty simple. Our local area fought us at every turn. None of its actions was in the best interests of our kids. None of their actions even aimed at giving them an adequate education. All of their actions were deeply unprofessional; many of their actions were unlawful.
We got there in the end, as a family. We went through Tribunal, some of us broke briefly, but we mended ourselves and the boys finally – finally – now have a full shot at life. It was worth it – but it never, ever, should have been this way. It never should have been allowed to be this way.
And the worst thing? There are thousands of families in the same boat right now. Still. Despite all the change in legislation last year. Families who coped fine with the stress of disability and severe illness, who now find themselves falling apart against the gruelling, life-sapping struggle to get their kids the support they need to get a few GCSEs, life skills, and friends.
My youngest child’s best mate? He’s deaf too. He’s tough as nails. He beat leukaemia at the age of 3. But this year, he nearly fell apart with the stress of knowing that an entire local area was trying to deny him a place at the special school he needed. His LA acted unlawfully. Repeatedly, without mercy, without remorse. Because it could. Because it can. Because it is not yet accountable in any meaningful sense of the word.
This is why you have to get this right. Because there is no-one else out there both willing and able to hold local area organisations like this to account. Parents and charities like the NDCS have been holding the ring here for far, far too long. And thus far, no-one else has stepped in.
We’ve tried the local area complaints process. It’s pointless. We’ve tried the Local Government Ombudsman. It’s toothless. We need expert, independent people to inspect these organisations, without fear or favour. We need them now. And that’s where you come in.
How do I know my local area’s actions were wrong? Because along the way, I have had to read, learn and inwardly digest several hundred pages of dense legalese and education jargon. I have had to argue, resist intimidation, fight my kids’ corner, do it again and again, year after year. Not for a Rolls-Royce education. Simply to get my bright, hard-working lads a shot at basic literacy, numeracy and a peer group.
We weren’t experts when we started out. We are now, and we’ve had enough. We’re sick and tired of being the ones doing the accountability. We’ve got kids with SEND to bring up, wider family to support, jobs to hold down. Frankly, life is busy enough.
Over to you, Ofsted & CQC. Please – please – don’t bugger this up.
The Ofsted/CQC consultation closes on the 4th January so there is still time to have your say. You can respond by going to the Ofsted website. Or you can respond using a NDCS template response for parents.
Philip Merryweather
December 21, 2015
It is fair to say that and please respect the parents wishes for the educational needs of the children like my mum fought for me to go to a different school than the local education authorities choices thinks is best to save money etc. Please treat each child needs as an individual not as a group of children like on a production line.
Penelope Beschizza
December 21, 2015
We Deaf people who benefited more from quality Deaf Education – Deaf schools or well-equipped Deaf Educational centre (I avoid the word ‘unit’ as it signifies isolation; ‘centre’ is accessible to everyone at the school) – do fully feel deaf kids’ parents’ pain, also professionals’, in the endless battle with narrow-minded bureaucrats in LAs.
However there is a clear need for a centrally-governmental fund to support additional costs to LAs in placing children into discrete schools.
Also for more Deaf professionals to be involved in the process, bringing clarity and focus to everyone concerned, minimising the trauma families are experiencing still.
deaflinguist
December 22, 2015
It’s hugely depressing to see that the same battles that were fought for me as a deaf child by my parents 40 years ago, and by a family friend for their son with learning difficulties, 20 years ago, continue to be fought. The main issue is that there is no ‘one size fits all’ for any deaf child (or any other SEN). It’s an exhausting battle. Heck, I found it exhausting as my parents rolled up their sleeves and took on the LA on my behalf.
It’s a specialist branch of educational inspection and I think that’s probably why no one has grasped the nettle (pardon the mixed metaphor). There really needs to be a body independent of local authorities with specialists in every possible SEN discipline, e.g. educational specialists with experience of best practice working in their respective sectors (special schools/mainstream centres), and expert professionals (educational specialists and others) with personal experience of the relevant disabilities.
There is one important caveat. I can’t stress ‘best practice’ enough. I suspect not enough people know what it is and just muddle by or are very prescriptive – “thou shalt do it thus, and no other way”.
An independent body with teeth is sorely needed. There is precedent for this elsewhere in the current inspection regime. Jewish schools have their own inspectorate as well as being inspected by Ofsted, looking at specialist religious provision, ethos, and educational services such as Hebrew classes that, of course, are not covered in the mainstream domain and on which general Ofsted inspectors are not qualified to comment. It is just as crucial that young deaf and other children receive a high-quality education suited to their personal development.