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I have just got home from a lovely ride in the local country park with my deaf son who, apparently, is not ‘alright’ according to the locum doctor.
He seems perfectly fine to me so I am not sure why anyone would think there’s anything wrong with him.
This label came about on a routine visit to the doctor.
It was one of those days where one of my kids was ill. This time, it was my hearing daughter, so off I trotted to the doctor and on arrival, I was told the locum doctor would see me.
‘Here I go,’ I thought … something about my deafness would surely come up. I have been subjected to endless questions about my deafness whenever I meet a new GP.
The questions vary but the answers are always the same.
Doctor: You’re deaf?
Me: Yes I am.
Doctor: But you speak so well?
Me: Er, *smiles awkwardly* … thinking … ‘what am I supposed to say?’
Doctor: Can you hear at all or do you just lipread?
Me: Erm, yes I can hear a bit but yes I lipread too …. *Silence* Erm, anyway, I have come here to discuss my problem.
Doctor: Oh, yes of course. How can I help?
Other times it goes like this:
Me: Hello.
Doctor: Hello, I see from your records you are deaf?
Me: Yes I am.
Doctor: Your family is deaf too?
Me: Yes, my parents, my sister, my son.
Doctor: Wow, so it’s genetic?
Me: Yes, I have Waardenburg syndrome so yes my deafness is hereditary.
Doctor: I have never heard of this before. Oh, your eyes are a different colour, wow!
Me: Yes, it’s part of the deaf gene.
Then the conversation steers towards methods of communication, sign language and so on.
Getting back to my daughter on this occasion, the locum doctor said to me, with a shocked expression, “you’re deaf?”
“Yes,” I reply.
“But your daughter, she’s alright isn’t she?” she asked.
“If you mean, is she hearing, then yes she is hearing.”
Grr, I think. What am I then? Not alright? I think I’m perfectly fine, thank you very much.
Next time, I visit the doctor along with my deaf son. Again, we meet the lovely locum doctor. On seeing my son’s hearing aid, the locum doctor gasped with a look of horror and pointed to his hearing aid.
Doctor: He’s deaf?
Me: Yes, he is deaf.
Doctor: But your daughter, she’s alright isn’t she?
I’m fuming. She says this in front of my 9 year-old son who looks confused.
Me: Yes, my daughter is hearing, but my son is alright. There is nothing wrong with him. Yes, he is deaf but that doesn’t matter to me, I can communicate with him just fine.
The conversation goes on for a bit, and finally we come round to sorting out my son’s earache or virus.
Luckily my son doesn’t seem to be too affected by what happened, but I am furious.
I thought I should make a formal complaint but then I think, ‘what difference would it make?’ Hearing people out there don’t understand that people who are culturally deaf are happy as they are.
My life, in many ways, is just the same as the lives of hearing people. I just face more barriers and prejudices.
Kate Rowley is a sign language researcher and is most passionate about deaf education and deaf children. Her main ambition is to ‘change the world’, to make a real difference to deaf children’s lives. Kate grew up in a deaf family, and went to a deaf secondary school. Her favourite things in the world are watching TV series, reading, spending time chatting and debating with other deafies!
mandy
April 9, 2016
I would absolutely put in a formal complaint, and I would question if the doctor is “alright”
Rosie Malezer
April 9, 2016
I found out how audistic many doctors were a long time ago.
“My life, in many ways, is just the same as the lives of hearing people. I just face more barriers and prejudices.” <– If only people would try and actually GET this. xx
Morgan Phillips
April 9, 2016
Kate, you really should complain, or at least give the GP Practice written feedback on this issue.
In the 21st century it’s just not ok for doctors to say such things. The locum GP needs some deaf awareness training and the Practice should inform his Responsible Officer (supervisor).
Natalie Mulley
April 9, 2016
Definitely complain. There’s a huge difference between ‘not alright’ and happy being who you are, and it’s not ‘alright’ for the dr to make assumptions and project them onto your son. I think the others are right, some awareness training is definitely needed. I suspect this is isn’t just a problem with deaf/hearing culture, but his attitudes towards anyone different to his idea of norm.
Antony Rabin
April 12, 2016
The doctor is ‘not alright!’
Hartmut
April 17, 2016
Reply to your GP, “Are you alright?”
Or tell a joke by initiating the following dialogue,
You: “Sick people go to hospitals, right?”
GP: “Yes”,
“You: “Do deaf people go to hospitals?”
GP: “Well, yes?”
You: “No, they don’t, because deafness is not a disease!”
Hartmut
April 17, 2016
I was inpatient in a hospital due to an eye problem. I got a visit by an attending physician with a handful of interns.
He explains to them that I was deaf. My chart has the information. He wanted to show off, how well he can handle a deaf person. Since it was just a routine round, I could handle the questions without an interpreter (that was 20 years ago). Then an intern, trying to impress the doctor, suggested to ask me about my hearing. He got a terrible stare from the doctor, because my hospital stay had nothing to do with my inability to hear.
Now, I was in the hospital again upon a heart attack. I directed the supervising RN to coordinate or arrange for an interpreter for the bedside visits of attending physician, specialists, and therapists. The hospital has an office of interpreting services who does this task. All what the RN needs t do is calling the interpreting office.
Irene Thomson
June 19, 2016
It’s the doctor who has a problem, not you. You and your son sound fine to me. I would complain VERY loudly to his supervisors – he has NO right to insult you in this, or any manner. Go right to the top if you feel you are not being listened to.