When I first found out about Breaking the Silence: Live – an hour of live primetime TV showing deaf people having their cochlear implants switched on for the first time – it was hard not to think that Channel 4 executives had seen the huge number of views viral videos of cochlear implant switch-ons and tried to figure out a way of making them into compelling TV.
My worry before watching it was that it might paint an overly positive picture of cochlear implants when they’re first switched on – that the programme might portray deaf people as being able to hear perfectly straight away, or ‘cured,’ or as though they’d been instantly ‘fixed.’
Having seen it, there could have been more about the hard work patients have to go through before the operation, how they qualify for an implant (which in itself is quite a rigorous process), and also the therapy they have to go through following switch-on. Plus the operation and recovery itself.
But what we did get was a truthful picture of what switch-on is like, and how a cochlear implant first sounds – with the responses from the participants including “tinny” and “high-pitched.” The audiologists came over well, and it was emphasised several times that this was the first day on a long journey for those taking part.
Showing this process completely live came with risks and although the responses from the participants were emotional and moving, they didn’t match the intensity – the tears and the pure emotion – of some of those viral videos that might have inspired it.
I think the programme was better for this. The participants seemed genuinely to be processing what they could hear, trying to make sense of it and getting to know the new sound. This felt true to how most people might respond in real life.
The majority of the participants were people who have been deafened in the last few years, and what came across strongly was just how isolated they were from those closest to them.
Marion had woken up two years ago to find she was unable to hear. Through that time, she’d been unable to hear a thing her husband was saying (although we realised when her implant was turned on that Ron might have raised his voice a little to help her out!).
We saw Bryan at the dinner table, surrounded by his family but unable to take part. All deaf people can relate to that.
It was also hard not to root for Rebecca, who had become profoundly deaf back in July and could not even lipread (she’d created her own signs with her sister), who wanted to be able to hear her son.
When Deaf sign language user Fiona appeared, with an interpreter, it was interesting to see the contrast between her and the deafened participants.
We could see that Fiona had access to language, and didn’t seem as isolated as the other people taking part. Like a number of older Deaf people I know, part of the reason she was having the implant was in order to hear her hearing children, as they grow up.
The live nature of the programme meant there was a contrast between the pre-recorded inserts, which were smoothly cut and gave us a chance to get to know the participants’ back stories, and the live segments in hospital settings which slightly lingered, and felt more clinical to watch.
From a deaf perspective, one problem with the programme being live was having to depend on live subtitles, with their mistakes and delays, to follow it (although a sign interpreted broadcast was available to those who can get the 4Seven channel). Not ideal.
The value of the programme lies in understanding what cochlear implant switch-on is like, what implants might sound like at first, and relating to the stories of the D/deaf people involved. I hope that we will get to see the longer picture of how they are getting on, say six months, or a year, further down the line.
What did you think of the programme? Tell us in the comments below.
Charlie is the editor of Limping Chicken, as well as being an award-winning filmmaker. He directed the comedies The Kiss and Four Deaf Yorkshiremen go to Blackpool, and three instalments of the documentary Found. As a journalist, he has written for the Guardian and BBC Online, and he is currently making a new two-part comedy programme.
Ria
November 23, 2016
Interesting article from your perspective. I felt that they needed to make it clear that the implant gets taken off at bed time. That’s when they become deaf again. A major opportunity missed.
I went through the CI process for 4 months but being totally deaf there was very very tiny glimmer of being successful so I decided to drop out of it. Am totally happy and comfortable with my decision as I have never heard anything so can’t really say I’ve missed sound anyway.
Dan
November 23, 2016
When Fiona say she relieved that she have two hearing children but what about thousand of deaf children out there? Not very nice when she say that!
Fiona
November 23, 2016
Hello, it’s Fiona from the show, I am sorry for you to see that part as I did explained why that I was relief of my hearing children over the dead education all over uk going backward what with so many deaf school being closed. I don’t feel that the deaf community now is as strong as back then such as technology take over, some deaf sport dying etc. I did mention in my pre interview that I am so proud of my deaf id and still deaf when take off my CI. But unfortunately channel 4 decide to cut that off. So I am sorry if you think like that on the show. It wasn’t in my control. Hope you understand my situation.
I of course are rooting for all deaf children to get all
The best so we still have a journey to push for more better education for them.
Manu thanks
Fiona
Editor
November 23, 2016
Hi Fiona,
Thank you for your comment, I just wanted to say that I thought you came across really well overall, I hope it went well for you and that you’re getting used to the sound today –
Best wishes
Charlie (Ed)
Adhiti
November 23, 2016
Hi Fiona would love to get in touch with you – I found you quite inspiring, are you on FB/Twitter? Thanks
BTW I am also a CI user, was switched on 2 yrs ago
RogH
November 23, 2016
I went through the process over 20 years ago and in the end the Consultant was shocked that I refused the opportunity for a CI. The reason being was that I became profoundly deaf through meningitis, as a result my cochleas are totally “furred up” (fossilised!). This meant that I could only have a single channel processor thus not much benefit from a CI- just ‘noise’.
I have never regretted my decision once.
Unfortunately the programme did not make it clear that CI’s are not suitable for everyone, and not everyone is able to cope with the sudden change of being able to hear some sounds after many years of profound deafness.
In addition, the programme made it appear a magic solution, which (as you have clearly stated, Charlie) it is not as patients, along with their family & friends, go through months of adjustments (I should know as my wife and most of our friends have had CI’s in the last year!)
Lauren
November 23, 2016
Glad you said this. im awaiting all my family and frieds to turn round and proclaim to me they have found a miracle cure for me buy watching channel 4 lol
Adhiti
November 23, 2016
I have to say a ci is not a cure for deafness. Its more like a advanced aid for hearing. If you are not wearing your CI device then you can’t hear anything – you’re still deaf.
Sylvia webb
November 23, 2016
If folk feel the tv programme Breaking the Silence shown last night either misrepresented the situation or misled the public by not giving the full picture, providing feedback to the film makers is important, so contact Channel 4 or the film makers with your thoughts.
At least the programme may raise awareness of the problems we face and “deafness” will be brought public notice.
Deafnotdaft
November 23, 2016
A good review of a good programme, Charlie.
But you’re right to comment that the subtitling was poor because it was broadcast live, Can I suggest that you contact Channel 4 and use Limping Chicken’s clout to try and get them to add good quality subtitles to the recording on their catch-up service? Or (better) to show a repeat with good quality subtitles added?
Ruth Bullock
November 23, 2016
There seems to be a BSL signed version on the channel 4 player app.
DANIEL BOWLES
November 23, 2016
i have been a hearing person although after being diagnosed type1 diabetic when i was 31, i am now 45,i first had a HA in one ear at 32 and what a difference(now this is now my poorest ear and it only really works with my ci),after a few years i had 2 HA’s now my right, which is now a ci ear,was my best hearing ear through HA help,suddenly around 2 years ago i lost hearing in that ear like a light switch i live around 20 minutes from Manchester so first saw Deborah and after around 6 months later i had my operation and a month later switch on, i would have loved to have videod it as last night had me in tears and i hope all who were switched on get as much as i do out of it ,obviously yes i am deaf at bedtime and sometimes still use subtitles to watch tv,anyone need to talk or any help please feel free to contact me, what a great article this was to read and i thouroughly enjoyed the programme
Adhiti
November 23, 2016
I loved this documentary. Brought back memories of my switch on this time two years ago. Loved to see other peoples experiences as well.
I do admit i found it hard to follow the show with the live subtitles but the show WAS live, so that was understandable – i mean we all know subtitles are off when shows are live anyway.
Fiona
November 23, 2016
Thank you Charlie,much appreciate of your wishes. Yes I hope it will get better with time.
Many thanks
Fiona
william
November 23, 2016
hi fiona im 56 and have just started my tests today see if im suitable for implant
Fiona Ng
November 23, 2016
Me and my partner decide to do Facebook live tonight at 9:30pm to give you more input from our perspective on cochlear implant and deaf cultural, our deaf identify, views on breaking the silence journey.
We will welcome open questions and discussion on our experience and journey on cochlear implant, that it might benefit you to learn more about us both as sign language user couple
Please following or visit Michael R. Ward’s page to view Facebook Live at 9:30pm
Claire
November 23, 2016
That good see channel 4 make look more clear understand I wish see more time (not enough 1/2hours ) would be show cochlear Implant details else’s over 1hours
Joanna
November 23, 2016
A great review of the programme Charlie. I watched it too.My husband was deafened suddenly about five years ago and we went through the whole CI assessment process with him finally having the operation ion in one ear just over two years ago. He was lucky that because he had been deafened fairly recently, he had a good knowledge of sound and was able to hear with his new CI straightaway.He still struggles in every day situations though and still uses subtitles. It’s easier if people are deaf aware, which, unfortunately, a lot of people are not. I have also met lots of deaf people who have had CIS with very different outcomes though, some much more successful than others. I agree that it is not a miracle ‘cure’ or ‘fix’ and everyone goes through their own hearing journeys. Also, I think that it is a very personal choice to decide to go through with it all and it is not an easy one. CIS are also not for everyone, but I think that everyone should respect other people’s personal choices and reasons for going through with it. At least this programme gave a more balanced picture than the viral, emotional ‘switch-ons’.
keith
November 23, 2016
As a profoundly deaf user of hearing aids, I thought the programme landed about right for me. The reality of the live feeds felt balanced against the backstories, albeit at times during the live feeds, it did feel I was intruding in on a private situation. I applaud Channel 4 for commissioning it, and am in awe of the people who took part. I too would like to see a follow up of the people on the show, but also hope that this gives Channel 4 the confidence to commission other shows about deafness and deaf/Deaf people. For example I would love to see a show on how deaf/Deaf people have excelled in a hearing workplace, or are maybe excelling in the online business worlds, showing the challenges and rewards both for the individuals, business and customers. I guess I want to see more content/programmes that paint a richer picture of the wider deaf/Deaf community in work to complement the other viral sensations of signing barista’s.
Helen
November 24, 2016
I watched the programme and was disappointed . I expected more of the process and a follow up , as most of the people were older and had lost hearing , seemed to be perfect candidates. Also all of them seemed to imply they were hearing’words’ and in one persons comment actually repeated what was being said even though the audiologist sounded ‘tinny’ robotic, and even Micky mouse ish.
Would have liked some data how many people success rate types of deafness children/adults involved and yes much more emphasis on the fact these people are deaf without the implants. Would like to have seen all 8 people, felt it was a lost opportunity to inform the public
Semhar
November 24, 2016
Hi Fiona.
I loved watching your switch-on as it reflected my experience too – the ‘surprise’ is unexplainable and yet, years again, I’m a changed lady – right now I’m embracing beautiful array of musical sounds. The programme managed to show the true reflection of different switch-on experiences, I just wish there were more profoundly deaf recipients shown on air.
As well as the rest of the public, I would love to hear how you get on in 6 months, it would be fantastic if Channel 4 were able to follow it up too. Now that you’re in a new world of sound, stay positive and don’t give up. Once you put in the hard work, you’ll power through with your progress 🙂
Semhar x
Rod Jones
November 24, 2016
Yes I agree the programme ran much better than I originally assumed it would. I was expecting the sort of emotive presentation of CI that has been seen recently on social media. In the event it was well balanced and very “real”. Well done for Fiona and Micheal for taking part. You have certainly made me view the issue of CI differently; I am at the start of the assessment process at the moment. Like other postee’s also think another programme in a years time would be a great opportunity to review the progress of all the participants from yesterdays programme.