Sadly, my Mum passed away last March. For the past year, I’ve been thinking a lot about her life and the challenges she faced.
So for this year’s Mother’s Day, I thought I’d pay tribute to her life and hopefully send a message to all other Mums of deaf children how amazing they are too.
(Dads are amazing too but will focus on Mums today for obvious reasons)
Mum grew up in a time where disabled people were invisible in society and largely hidden away in homes. She said she’d rarely ever met anyone who was disabled and certainly not anyone who was deaf.
She was one of the 90% of parents of deaf children who had no prior connection to deafness. And then she ended up having not one, but two deaf children.
But one of the things that made my Mum so amazing was her bloody-mindedness. She took some time to grieve and get over the shock. And then she got on with things.
She listened to the Teachers of the Deaf who came round to the house and hoovered up everything they said about having high expectations and getting all the language drilled into me.
She would read into my ears as I went to sleep and got to grips with the big clunky old microphones from back in the 80s. She talked to me all day and made it clear she expected me to reply.
She never corrected me when I mispronounced things but just nudged me in the right direction without me realising. She praised me all the time for just trying and even when I was a grown 30something living in London told me how proud she was of me whenever she spoke to me.
She noticed how the other Mums would sometimes look at us and make unkind remarks – she never let it get her down.
If she was worried that the teachers at school were doing something wrong, she told them to sort it. She worked hard to get us a good education and worked even harder to help us catch up on anything we missed out on when we got home. And she gave us breaks when we needed it and more-than-occasional treats to reward us.
I know later in life she worried about the choices she made for us. The local authority we grew up in, Leicestershire, was at the time, very pro-oral and parents weren’t really given any information to help them make informed choices.
I sometimes suspected that she regretted not learning sign language herself, if only to visually support all the spoken language she was giving us.
If she had survived the stroke that eventually brought her down, I would have told her we had nothing but gratitude and respect for all the decisions she had to make and never held anything against her. And if I’ve inherited just a quarter of my Mum’s determination, I’ll be happy.
Being a Mum is hard. Being a Mum of a disabled child is even harder, wading through all the information, having to make choices without knowing if they’re the right ones whilst also doing everything else that Mums are expected to.
It’s exhausting having to fight for your child and be bloody-minded all the time. It shouldn’t have to be. But that Mums do fight and do struggle is what makes them extra special.
I hope that on Mother’s day, Mums of deaf children everywhere know and will remember how grateful their children are that they do.
My Mum did her best. And she was amazing for it.
Read Ian’s previous articles for us here.
Ian Noon has been profoundly deaf since birth, giving him an interesting perspective “on what needs to change for deaf children and young people in the UK. It also means I have very questionable taste in music.” When he’s not stealing the biscuits in the office, he runs, does yoga and plans his next backpacking holiday. He works for a deaf charity but his views expressed on his blog and here, are his own. Follow him on Twitter as @IanNoon
mjfahey
March 24, 2017
Hear, Hear, Wonderful tribute and it’s so true, these days there is so much professional awareness of the needs of deaf children we forget that a few decades ago parents had to fight to get their child recognised as needing extra help. Your Mum sounds just like my own late mother who, in the 1960’s had three boys who where deaf/HoH and fought tooth and nail for years to get that extra help, so long was she fighting, the eldest left school before the education authorities agreed to help and I and my younger brother were admitted to schools for the deaf. All that time she was the one pushing us to do our best, just as yours was. Like you, I pay tribute to one strong lady, my own Mum. Love you Mum. x
RH
March 24, 2017
Having lost my own mother last Summer, I can only endorse Ian’s comments especially as since my mother passed away, it has been a time of reflection on what a difficult time it was for both my parents when I became profoundly deaf through meningitis at the age of 6.
One of the most difficult decisions they probably ever had to make in their lives was whether or not to send me away to boarding school far away. The issue was settled by Social services and Professor Ewing saying “think of the child not yourself”.
There is no doubt at all that my residential education greatly benefited me throughout my life. This was at the expense of my parents who had to made big financial sacrifices in the days when Councils would not always pay for school clothing, and my twin brother who had to go without.
On this forthcoming Mothers Day, rest in peace, Mum, knowing that all your efforts were VERY MUCH appreciated, even if they were not acknowledged.
pennybsl
March 24, 2017
Thank you, Ian, for bringing up this topic.
We agree with you that the role of deaf children’s mums & parents deserve better recognition.
My parents were active, thanks to the existence of NDCS, nationally and regionally, in the 1950s-1970s.
I, as an adult, fully appreciate the contribution and sheer resilience of my parents throughout my schooldays in both mainstream and discrete education.
Their loving belief in me, and my mother’s words ‘if you are happy, then we’re happy for you’ still resound within me through life’s journey. Their acceptance of my involvement within the Deaf Community meant a lot.
Finally I do so believe, on a higher level, their campaigning and support continues through us Deaf campaigners.
Louise
March 25, 2017
Thank you Ian for that beautiful tribute. I’m a hearing mum of deaf twins who are now 16. Because of their differences I sent one to mainstream with support and the other to a school for deaf children. For which we moved the family 300 miles in order for her to get a place. One daughter is implanted and the other a hearing aid user but we all learned to sign. My girls are about to sit their GCSEs and will go to colleges in September. Ive had to fight for them constantly but I know I made the right decisions at the time that I made them and I truly hope that my daughters feel the same. My life took a hugely different path due to their deafness, however, from that I got a fantastic job, amazing deaf friends and live in one of the best places in this country. It’s not all bad 🤗👍🙌
Jackie Tivey
March 24, 2017
Be assured Ian that your Mum will have been very proud of how that little boy has now grown into a man able to write such a lovely note of gratitude to her. All her hard work definitely paid off and, as another mother of a wonderful Deaf son, I know that’s all that she wanted and I hope that she saw it for herself .
Elayne
March 24, 2017
What a lovely tribute to your amazing mum, like many mums – especially those of children whose needs have to be fought for every step of the way – an unsung hero. She would surely have been so proud of you.
Martyn
March 25, 2017
Thanks for sharing those tributes. My mum’s birthday is on the first day of spring, so I am always thinking of her around this time. She passed away 10 years ago, after a long battle with dementia. Like the mums I’ve been reading about here, she was kind and gentle, but had that steely inner strength. After the dementia stripped her inhibitions away, those qualities were still there. Above all she was fair. She treated her three boys just the same, despite the youngest (me) being deaf. I wish my parents had known about NDCS. My mum would have been networking and making friends, while my dad would have been interrogating the professionals and driving them mad.
Mums are special – look after yours.
Evangeline phillips
March 25, 2017
The only person I ever had contact with who was hard of hearing was my Grandma. She tried very hard to understand what was said and had a certain way of nodding her head diagonally and raising her eyebrows. When she did this we talked into her ear and she then would know what we were saying. Its lovely to see your gratitude for all your mum’s hard work to raise you. Thank goodness that society now had a much better attitude to deafness, along with many other disabilities. Long may this attitude continue.
Angela Bengsen
March 27, 2017
Your Mum left a legacy to be extremely proud of. For all the scholarly articles I’ve ever read on describing the impacts of deafness, none have reached me like your descriptions as a deaf person living with it. It’s helped me understand my daughter when the rest of the world didn’t seem to, and your own experience with concentration fatigue has helped in my darkest hours. Thank you to you and your amazing Mum. I’m sorry for your loss.
Natalya
March 27, 2017
Your mum sounds a lot like mine, a lot of what you say sounds familiar. I am so sorry for your loss.
I think you absolutely are as determined as she is. I am looking up papers you tweeted from #TDL2017 and your writing on concentration fatigue was utterly lifechanging for me.