I thought I’d try out a new format for Limping Chicken this month – a sort of deafie diary, if you will, an overview of all those day-to-day niggles us cloth-ears face which don’t merit articles in their own right.
Love it or hate it, let me know what you think.
Saturday 20 July
At my local train station to catch a train I absolutely have to be on to avoid the whole day going merrily to pot, I face the confusion of a changed platform with no new departure point displayed on the screens. Hear the announcements? Don’t make me laugh.
Waves of panic wash over me. In the end, I force a guard (sorry, Customer Services Assistant) to write down what I have to do, as the seconds slip away. I follow the instructions, and wait on the footbridge for the elusive new platform number to be revealed.
I ask a woman standing next to me to relay any announcements, explaining that I can’t hear them. I’d seen her a couple of minutes earlier, and knew she was aiming for the same train. She nods, but as soon as the platform is announced on the tannoy, she scuttles off with her pushchair.
Eventually, it flashes up and I just about make my train.
Saturday 27 July 2019
To Oxford to see Twelfth Night in the quad outside the Old Bodleian. It’s a brilliant production, we have good seats and I can follow it by discreetly reading the text until the light fades. Luckily I’ve seen it before and know the play a little.
All goes swimmingly – until a party starts up on the other side of one of the quad walls. A very noisy party, loud enough to distract and annoy the hearing, never mind the deaf. The last couple of acts go almost entirely unheard, as I try not to think about how much the ticket cost, or what that money could have bought instead.
Thursday 8 August 2019
In London for a market research focus group about an app for people with various disabilities I’ve been helping to test.
On the train up, I struggle to hear a fellow passenger when I ask him where the buffet car is. (I’m feeling reckless with a fiver’s worth of Great Western Railway vouchers.) Another passenger, sitting next to me, writes There is no buffet car on these trains anymore on his laptop for me.
The app helps travellers to navigate their way around an airport terminal. Frankly if I’m just lost, I’ll ask someone and force them to make themselves understood, and I hate maps and apps, but there you go.
The room is too small, hot and stuffy for the 10 or so of us, but, in a rare treat, the words are conveyed as live captions on a screen. Hilarious subtitle fail of the afternoon comes when some nonsense flashes up about Theresa May Airways. The idea of the ex-PM diversifying into civil aviation sends coffee dribbling from my nostrils. Then again, perhaps she needs another income stream now she’s a plain old backbencher.
Friday 9 August 2019
I’m meeting an acquaintance for coffee. It was one of those things said after a party. We must have coffee. I never expected her to take me up on it, and we’ve never met socially on our own before. We’ll call her E.
E is truly lovely, making what happens next infinitely worse. Her gentle, lilting Scottish tones, combined with the hiss and belch of the coffee machine in my town’s favourite (and indeed only) exclusively gluten-free gaff makes hearing her all but impossible. I resort to alternating between nodding, smiling and looking earnest.
Thank god I catch what she’s saying when she mentions A Sad And Serious Family Matter so I don’t stuff up by going ‘Aw, that’s really nice.’ And I know our views on Brexit are shared, so when I hear ‘backstop’ I know to shake my head in dismay and murmur, ‘I know, it’s awful.’
Still, it’s exhausting. I then meet my friend K for an early lunch, the coffee meet-up stretching delightfully into lunchtime. (I’m freelance. It’s a Friday. Your point?) Anyway, K’s more familiar voice is clear as a bell, the contrast marked, and she and I enjoy one of the best gossipy, bitchy and cackling lunches we’ve had in ages.
Thursday 15 August 2019
It is my mother’s birthday. Much as I want to phone, and hear her voice, I know this would be a tortuously pointless exercise. I send a text instead. She doesn’t reply.
Wednesday 21 August
I sit in the windowless, airless room of my local audiology department, and hand my hearing aids over to the quietly efficient audiologist, explaining I’ve found it more than usually hard to hear of late.
“Er,” she says, turning them over in her hands. “Do you realise you’ve put the right tubing back into the left mould?” No, I should have quipped, but I know I’ve put the left tube back into the right mould. (Somehow I have managed to do both. Excellent.)
Anyway, she adjusts the volume and it’s too loud, making my eardrums hurt and my ears pound until she resets it again. We agree that the limit is being reached of what my local audiology team can realistically do for me.
I do the initial screening test for a cochlear implant there and then. In another room, I sit in front of a speaker through which various random words are played. I catch some of the sounds, but hear a grand total of one word correctly.
“Will I make an appointment for you in Oxford for more cochlear implant testing?” asks the audiologist.
Now there’s a question.
Photo credit: Richard Brown, Progress Theatre
Elizabeth Callow
August 27, 2019
Liking your deaf diary very much
Helen Stewart
August 27, 2019
Juliet England:
I found your diary format so good to read! I have had an almost identical week, including a train journey when schedule was changed enroute. The good nature of fellow passengers was essential. Good to know I am not alone!
Exactly same outcome at recent audiology visit, except I am not quite in the cochlear implant zone.
I am trying to come to terms with communicating on a one to one basis only, which restricts so many social occasions. I have recently moved to a new area and am finding it difficult to join groups and make new friends. I always mention my lack of hearing and then find folk rarely bother to speak after that first introduction. Is this the best I can expect?
Do you have any tips, I wonder? Do you use personal hearing loops?
Wishing I could be more accepting of my disability but lately it is dragging me down somewhat.
Hartmut Teuber
September 11, 2019
A similar encounter on a train trip lasting 2 or more hours in Germany, I got engaged in an enlightening conversation with a passenger in the compartment. We familiarized ourselves with the small talk about our destinations, and purposes of the trip. I said I was a German living in the USA on a lecture tourney regarding audism. The word was new to her, the conversation via speech and writing continued on this topic, since my counterpart, an elderly lady with grand children, appeared to be highly educated and was very interested in it. Then an announcement came through about nearing my destination. Whop, she took over and informed me what she heard on the PA. I hurried to collect my luggage, closed my laptop computer, stashed the written notes into the computer case, and hurried to the door to exit the car. But somehow, another announcement came when I was already outside the compartment. She sent her 10-12 year-old grand child with the info that the train was held up to arrive the station 30 minutes later. Amazing, how the grandchild communicated with me via writing and gestures, although he just sat silently and watched the interaction between myself and his gramma.
Point here is that while relying on fellow passengers to make up the systemic deficiencies is humanely nice, it still should NEVER be built in the system to absolve the irresponsibility of the powers-be to make the system communicatively barrier-free to us. We must continue to tell horror stories when advocating removal of systemic communication barriers.