It’s the morning of the big switch-on, my nerves are already ripped to tatters, and I’ve barely left home before the day’s first problem kicks in. The bus driver en route to the station is, of course, wearing a mask, and he’s trying to say something I can’t hear. I only understand we’re going nowhere until whatever is troubling him is resolved.
As it turns out, my disabled pass just isn’t valid at that time of morning. I’m more than happy to pay the fare, but it’s taken minutes of my fellow passengers staring at me in that uniquely British, pained, gaze-averting silence before I work out what I have to do. I arrive to get the train to Oxford nearly in tears.
Anna, a middle-aged audiologist with a grey ponytail, holds up an iPad so I can read her words behind her face covering. Predictable hilarity ensues – I am just going to bed, You can cook your implant, Your hair is very pink. (I almost wish it was, thinking about it.)
She leads me into the switch-on room, setting up her phone at eye level so I can read the captions, which, in here at least, are disappointingly accurate and therefore not the slightest bit funny.
Anna explains that she is going to start me off on the lowest programme. Heart pounding, I wait for this long-anticipated moment. As expected, though, I can just hear a lot of beeps and whistles. Equally, it’s hard to know what I am taking in from my non-implanted right ear, in which I still have my powerful hearing aid.
And, not unexpectedly, it takes a while to get used to the thing, which falls off my head repeatedly until we (or rather she) replaces the magnet with a stronger one. One the plus side, it certainly seems a lot more discreet than my hearing aids, the flat disc tucking neatly under my hair.
The sheer volume of stuff I’ve been given to go with the thing is astonishing, filling the entire rucksack I am handed. Every spare part possible seems provided, along with every eventuality covered from swimming to energetic exercise (not that there’s much chance of my being involved in either) and the bit you need if you’re travelling between Glasgow and Edinburgh on a sunny Wednesday in the third week of March.
Anna, of course, has other people to see. When the hour is up I leave, laden down like a pack pony and with an unfamiliar object attached to the side of my head – there’s no denying the thing feels very odd indeed.
Over the course of the next few days, I do what I usually do when faced with something I’m a little bit wary of. I ignore it completely.
Eventually, I rummage through all the bits again, the boxes and various manuals and documents, none of which leaves me very much the wiser. But I keep forcing myself to persist. After all, this equipment has simply cost the taxpayer too much money for me to ignore it.
There is a breakthrough of sorts when I notice that the beeps are bopping along in time to some music on the radio, which I can sort of hear in my other ear. I’m so excited by this I email a friend to tell her immediately. “Yay! It’s working!” she replies triumphantly.
The next sort-of breakthrough is my first virtual training session with another audiologist called Emma.
We spend ages trying to get a video call set up on my laptop, but both the NHS system and Teams let us down, leaving us in elbow-gnawing frustration, unable to communicate. Eventually we make do with WhatsApp, using Emma’s phone for me to read subtitles on.
She’s unbelievably patient and calm, telling me not to stress out, insisting that it’s all perfectly normal at this stage to feel overwhelmed, and to just hear beeps and whistles. She tells me that I don’t need to know how to use all the equipment now, but should just focus on the basics – the processor, the drying box you’re supposed to put it in at night, the batteries and their charger. To get into the habit of charging the thing up every night. She also shows me how to put the implant on to programme 2.
We do our first little exercise, with me trying to make out some numbers Emma is saying with her mouth covered. The first time she does this, she leaves her phone uncovered, so I can read her words as captions on her phone. (Reader, I cheated.) And the look of delight on her face when I get the numbers right is so heart-breaking that I feel obliged to own up immediately. She laughs, sighs, rolls her eyes, covers her phone, and we start again. This time, nothing.
But it will come. I’m due back in Oxford as I write this, for another appointment, the first in-person follow-up since the switch-on. And if I’ve learned one thing in the last couple of weeks, it’s that this is going to be a very long journey indeed.
Ann
January 4, 2021
I had my cochlear implant June 2016. I’m 67 now. Hearing aids for 15 years.
It does take months to understand speech. The most helpful things for me, was practice with my husband. We made flash cards, to a theme (bathroom items, or food etc) which he shuffled and we did them all twice a day. The other thing that really helped was buying a Bluetooth phone mic, which relayed the radio from iplayer on my iPad direct to the processor. I listened to radio 4 for 2 hours every morning, and gradually understood more and more. (Hadn’t been able to listen to the radio for years.) After about 2 years (I know, it seems a long time) I could understand 100% speech in a quiet room, looking at the face in front of me, and 95% of the radio (no lip reading, obviously.) Now, I only have the cochlear. I have about 2% low frequency left in my other ear, and abandoned the hearing aid after about 4 weeks.
Persevere, it is a wonderful gift! Best regards Ann
Vera
January 4, 2021
Gosh, Covid is really affecting this. I had three hours of advice and practice on switch on day, and another appointment a week later. My heart goes out to you.
If it’s any encouragement my brain struggled for a few days but then seemed to suddenly “get” that the beeps and new sounds were in fact speech, after which progress was very rapid.
Very best wishes from someone three years in, whose life was transformed.
Lana Senchal
January 4, 2021
Hi Juliet, that you have done it at last.. now the long journey begins… patience is important… wish you all the best of luck getting everything well and successful. xxx The New Year truly starts for you.
JamesH
January 5, 2021
Lovely to read your account of switch on.
Luckily I had my implant at the end of January last year and it was switched on just before the first lockdown came into force.
Almost a year on I am still astounded by just how good it is – way beyond my original expectations and very much worth persisting with.
After about 4 months the very robotic voices became much more recognisable. Today they are even clearer and better than I remember them with hearing aids.
At 10 months in I am now getting more and more enjoyment from music and for a long time I didn’t think that was going to happen.
It is a long journey but very much worth the time and effort!