Today’s edition of See Hear, the BBC’s programme for deaf and hard of hearing people, focuses on one of the biggest issues for deaf people today: access to healthcare. With a seemingly never-ending stream of shocking stories revealing how deaf people are not receiving equal treatment in the NHS; deaf people’s access to healthcare has never been further up the agenda. This year has already seen coverage of the issue in the national press and on radio with two damning official reports being written on the subject. Today, See Hear investigates.
“This is a topic which has been in and out of the news in recent months, and The Limping Chicken has been at the forefront of this coverage in many ways.” Said William Mager, Series Producer of See Hear.
“It was the moving story about Matt Dixon interpreting for his deaf father at a hospital appointment when he told him he would die of cancer that started bringing the issue to wider attention.”
“Healthwatch York did a report into health and social care for deaf people in that area and it owed a lot to Matt’s story. We’ve also seen SignHealth’s recent report on deaf people’s general lack of health due to lack of access. Everything is pointing towards a huge issue that needs to be highlighted and subsequently resolved.”
Matt Dixon was forced into a position of having to tell his own father that his cancer was terminal. While Matt’s story is rare, it is certainly not unique and deaf people across the country routinely face potentially dangerous communication barriers.
“For many of us, going to hospital in the first place can be an unpleasant experience.” William continued.
“When deaf people pay the additional penalty of not knowing whether interpreter support will be provided or whether they’re going to understand the doctor at all, that’s a burden which shouldn’t have to be shouldered.”
“As SignHealth’s report tells us, the long term impact of that is that deaf people are more reluctant to go to the doctor about health issues, which in turn results in poor overall health and potentially severe illnesses going undiagnosed. That’s an infringement of basic human rights, and shouldn’t be happening.”
The off-putting and complex bureaucracy of NHS complaint processes means that deaf people often don’t flag-up when things go wrong. On Monday, our contributing Editor Emily Howlett demonstrated what complaining can achieve but despite consistent campaigning by health-related deaf charities, William finds deaf people are still not exercising their rights.
“I was surprised to find that so few deaf people actually complain to the right people about their negative experiences.” He said.
“Finding the right contact for your hospital or local health authority and giving feedback about your experience can actually make a difference. Don’t assume that nothing you do or say will have an effect. You may be surprised how willing people are to adapt and make things better.”
This week’s See Hear follows hot on the heels of a debate in the House of Lords but so far, there appears to be no legislative changes planned to do anything about healthcare providers who fall short of their obligations to deaf patients. As a result, deaf people are more likely to avoid addressing suspected health problems and suffer serious consequences as a result.
“The House of Lords has taken notice of the issues deaf people face in healthcare and that’s a positive. I think additional reform to the Equality Act could eliminate further doubt about the responsibilities of healthcare providers or perhaps the British Deaf Association’s proposed BSL Act, separate from the Equality Act, is required to give deaf people more rights to equal healthcare provision.”
“I hope that in the future deaf patients aren’t deterred from going to hospital or to their doctor as a result of bad practice. There are lots of amazing examples of good practice shown by several hospitals and doctors surgeries out there – it feels like a shame that we always have to highlight the negatives.”
See Hear is on BBC2 today at 10.30am and is repeated at 12.20am tonight. You can also watch it shortly after broadcast on BBC iPlayer here.
By Andy Palmer, Deputy Editor. Andy also volunteers for the Peterborough and District Deaf Children’s Society on their website, deaf football coaching and other events. Contact him on twitter @LC_AndyP
pennybsl
April 9, 2014
The House of Lords discussion on Deaf people’s challenges in healthcare wa welcome, but upon reading the reported narrative it was spoiled by a peer who is involved with the Ewing Foundation, apparently ‘looking down at sign language deaf people’.
He stated in not so many words that the majority of non-signers with CIs etc are doing OK in society.
What upset us is his total ignorance of the fact that society and in most parts of the NHS, communication is handled poorly, and many non-signing deaf people, even with CIs too, experience similar stressful situations too.
Such views hinder the progress towards better communications in public and private services, benefiting all of us Deaf & hearing users.
Andy. Not him, me.
April 9, 2014
It’s not often that I blether on about models but in this case I believe our problem with the NHS is pure medical model. Simple as that. We are seen as needing a cure, as needy people who have to be constantly cared for. This is laughably far from the truth. And there you have it.
The problem with models is that they are not perfect, most situations are a mix of one type and another to some degree. But the NHS problem in my humble opinion is 100% medical.
I think it’s a bad idea to have audiology departments in hospitals anyway. We are not ill!
Back when I was a kid we were supposed to get new batteries from the audiology department at the hospital in London. You couldn’t go just anywhere, it had to be that one. With your book, or you got nothing. There you could prise one or possibly several AA cells out of the cold dead hand of the NHS. Really, it was like that. So what many people did was just bought their AA cells in Woolworths or the electrical shop.
Things have improved since then but when I read the tales of woe on various platforms I realise that actually the stone cold heart of the NHS is still there. What can we do about it?
Well I have done a little bit to try and get improvements done and I find the best way is through formal channels. Don’t complain to the desk staff, complain in writing to the management committee, to the county or other councillor responsible for liasing with the NHS, to the PALS committee, to Healthwatch. If your English isn’t great (and plenty of hearing people are in the same position) then help each other out. You can use email, it costs nothing.
As evidence that things can be done I point to Ian Crimond and his little campaigning organisation who featured here last year. Ian has captured the attention of quite a number of officials in Wales and made them aware of the poor state of affairs there. This is just one man. What could we do if people acted *together* to change things in the NHS?
http://dargfmallard.blogspot.co.uk/
Lana
April 9, 2014
“I think it’s a bad idea to have audiology departments in hospitals anyway. We are not ill!”
is an interesting topic. NHS would save more money if these services are transferred to Boots or Optician care departments and use the money on interpreters for Deaf in need.
Andy. Not him, me.
April 9, 2014
If I could just respond… It all adds to the “medical” idea doesn’t it?
I have often thought that there is no need to associate us with hospitals at all. It’s not as if we bleed or need urgent X rays or any of the other medical things. We just go there for earmoulds, batteries and tubing and to get our canals cleaned out and other mundane things of that nature. We seldom see an actual doctor. They are all technicians not medics.
I think it is fair to say that an audiology department would run perfectly well in a converted High Street shop for example. Or an office suite in town. There are plenty of empty places these days. It would get away from the “broken, need fixing” idea.
Lana
April 9, 2014
“I think it’s a bad idea to have audiology departments in hospitals anyway. We are not ill!”
from Andy.Not him,me is an interesting topic. NHS would save more money if these services are transferred to Boots or Optician care departments and use the money on interpreters for Deaf in need.
Lana
April 9, 2014
Editor.. this is to reply Andy… sorry for second one.. you will sort this out.. thanks
Helen Grote
April 9, 2014
Great programme, thanks. The interview with the clinical director at UCLH highlights just how many deaf people need sign language interpreters (1400 at one hospital trust in one year!)
Re: moving audiology services to Boots etc- while this might be convenient for you, it would not save the NHS money (these are private companies, and profits need to be generated for shareholders!) and would only further fragment NHS services. A better solution would be extending community hearing aid clinics into larger GP practices.
The issue here is not funding for interpreters- it is access to them. Part of the problem may be that hospital trusts have a contract with one agency only- perhaps encouraging the procurement teams at these hospitals to review their contracts, particularly for out-of-hours provision of interpreters would help to improve the situation.
Deaf awareness for NHS staff is something that would make a huge difference too- this could easily be incorporated into the mandatory induction lectures/ modules that all staff have to undertake on joining a hospital trust. Some hospital trusts, including King’s College Hospital also run sign language courses for their staff after work to help improve communication with deaf people.
Kevin Buckle
April 10, 2014
It would make an impact on the hearing candidates at the job interview for the post of nurse or healthcare staff if one of the interviewers is deaf to test how much the candidates know about deaf culture, how to ask for the interpreters or something like that. So, it means that it would be a good plan to seek and recruit the right person for the right job within the NHS.