I went to a great conference today. It was riveting and I was hooked on pretty much every word.
And then I got home and collapsed on the sofa. I’m not just tired, I’m shattered. I’ve had to turn my ears off to rest in silence and my eyes are burning. I’ve also had about 3 cups of tea just to write this paragraph.
Boo-hoo, so the Noon is tired, so what? True. People go through worse.
But I do also think the fact that the impact of deafness doesn’t just manifest itself in communication is ever really that well understood. It’s about the energy involved in lipreading and being attentive all day long.
Processing and constructing meaning out of half-heard words and sentences. Making guesses and figuring out context. And then thinking of something intelligent to say in response to an invariably random question.
It’s like doing jigsaws, Suduku and Scrabble all at the same time.
For deaf children and young people, especially, I don’t think this impact is as widely recognised as it should be. Advice to teachers on working with deaf children tends to talk far more about language and communication, rather than concentration fatigue.
And some deaf children and young people I meet haven’t been given the space to talk about what impact deafness has on them and to work out strategies to deal with it; like taking regular breaks and being honest to grown ups that they’re tired, without fear they’ll be labelled as lazy.
When I was younger, I was a little embarrassed to be so tired all the time. I would force myself to go out and be busy and out there when really all I wanted to do was crawl under the sofa and nap for a hundred years. Nobody ever really told me that being tired was ‘OK’.
It follows through to when deaf young people grew up and become deaf professionals. It was a long while before I started to openly admit to colleagues that long or successive meetings are the enemy of me and that I would need extended breaks to be able to function later. And to get friends to realise that if I wasn’t saying very much in the pub, it’s probably cos I was too tired to think.
I guess what I’m trying to say is that deaf people can do anything and everything. We can change the world. But we might need a nap and a cuppa tea every once in a while, so don’t judge us.
Ian Noon has been profoundly deaf since birth, giving him an interesting perspective “on what needs to change for deaf children and young people in the UK. It also means I have very questionable taste in music.” When he’s not stealing the biscuits in the office, he runs, does yoga and plans his next backpacking holiday. He works for a deaf charity but his views expressed on his blog and here, are his own. Follow him on Twitter as @IanNoon
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